It has been a difficult year for many in the mesothelioma family. Many have lost loved ones, or are facing a scary diagnosis. But 2009 also held a lot of good news. To illustrate that, I’d like to share a news article about our great friend in the UK, Debbie Brewer. Just after Christmas, Debbie was featured on the front page of The Herald, a newspaper that covers the Plymouth area. The paper describes Plymouth as a “hotspot for asbestos-related deaths.”

In the feature, Debbie talks about how she moved from what was presented to her as a death sentence to her new outlook of happiness, hope and survival. Debbie was diagnosed in November 2006, at which time she thought she might be seeing her last Christmas. Doctors estimated she had only six to nine months to live.

As most of you know, Debbie refused to accept the prognosis that she had only months to live, instead actively seeking alternative medical treatments that might take a fresh look at her cancer and provide her with new options. Primarily, she found Prof. Thomas Vogl at the University Clinic in Frankfurt, Germany, who administers a therapy called chemoembolization. In this therapy, chemotherapy drugs are introduced directly to the tumor area through a catheter into the lung.

Because the treatment is still in clinical trial stages, Debbie had to travel to Germany for each treatment, not available in the UK, and paid for travel expenses and medical care from her own pocket. However, results were amazing, and Debbie’s tumor shrunk by more than 80 percent, putting her in full remission.

Despite a recent setback, when a September check-up showed cancer in her lymph node had increased in size (the tumor in her lung remains stable), she is optimistic. She lobbies energetically for mesothelioma and asbestos awareness, and also to bring chemoembolization to the UK so that more people might try this new therapy that has shown so much success in her case.

The paper quotes Debbie as saying, “Christmas is the time of year I celebrate being here. ”

We love you, Debbie, and we are SO glad to celebrate another Christmas with you, and we look forward to spending 2010 with you!

Read the full article.

As part of its look back at the year 2009, the Missioulian newspaper spoke with residents of Libby, Montana, the “poster child” for mesothelioma and other asbestos related diseases. Libby and its people have been decimated by asbestos exposure from the vermiculite mine that for generations operated in the town. Even those who did not work in the mine were affected, as asbestos dust blanketed the town, spilled from trucks and railway cars, and asbestos particles were used as landfill throughout the town.

W.R. Grace & Company operated the mine. In 2009, the company and several of its officers were brought up on criminal charges, but a jury returned a verdict of “not guilty.” Many following the trial closely said the government botched its case against the company, and others argued Grace’s deep pockets simply outpaced the efforts of a handful of government lawyers.

The aquittal was another in a long line of emotional blows for Libby residents, who hoped to see W.R. Grace finally brought to justice for the devastation of their hometown, their families and loved ones. Generations of Libby residents have already died of mesothelioma, and many more are currently suffering from mesothelioma, asbestosis, lung cancer, and a host of other ailments caused by longterm exposure to asbestos.

On June 17, the U.S. Environmental Protection Agency finally declared a public health emergency in Libby. This designation – the first of its kind in American history – will allow the government to increase funds to provide for medical treatment for Libby residents, and for research into asbestos disease. According to the Missoulian, Libby has already received $6 million, which is designated for patient screening and care, and the town is set to receive an additional $2 million for health care and home care assistance. The paper reports the asbestos health care clinic – the Center for Asbestos Related Diseases (CARD) – and the local hospital are planning expansions.

At the beginning of December, a series of town hall meetings were held, hoping to address important questions about safety and health, including whether or not the government’s clean-up efforts are truly making any difference.

For residents who already have seen husbands, fathers, brothers, sisters, husbands and wives die terrible deaths from asbestos disease, it is too little too late. They try to remain strong, but they are angry, and sad, and it’s hard to hold onto hope.

Read the full article by Missoulian reporter Micheal Jamison.

As 2009 draws to a close, the Mesothelioma Applied Research Foundation would like to remind those of us in the meso community that there is still much work to be done in the quest for a cure. The Meso Foundation has created a powerful two-minute video featuring the testimonies of mesothelioma victims and their families, including heartbreaking stories of loss, but also triumphant declarations of success against this dreaded cancer.

Please share the following video with your family and friends, and fellow mesothelioma warriors, and help raise awareness about the many lives touched by mesothelioma.

You can visit the Meso Foundation online to make a donation to help this organization fund mesothelioma reserach and continue providing patient services, or mail your contribution to:

Mesothelioma Applied Research Foundation
P.O. Box 91840
Santa Barbara, CA 93190-1840

You may specify a loved one in whose memory the contribution is made, which will be acknowledged on the Tribute Wall, displayed at the annual International Symposium on Malignant Mesothelioma in June 2010. Contributions over $100 also will be acknowledged in the Meso Foundation Annual Report. There is much more information online about how you can help. Please visit them today!

On Monday, December 28, the Asbestos Disease Awareness Organization (ADAO) will continue a longstanding tradition of lighting a candle in memory of those loved ones lost to mesothelioma. This is actually the first of two candlelighting ceremonies. The second will be held Monday, January 4, 2010, in honor of all the mesothelioma “warriors” still battling and conquering this devastating disease.

You are invited to add the name of your loved one to ADAO’s master list, either in memory or in honor of someone you love. This project is conducted in conjunction with the Association of Cancer Online Resources (ACOR). View the list, or email acor@AsbestosDiseaseAwareness.org to add a name to the list.

Linda Reinstein, ADAO’s co-founder, says, “Since founding ADAO in March 2004, thanks to the efforts for our all-volunteer organization, we have grown beyond our initial expectations. Our passion and commitment to preventing asbestos exposure, offering support and resources and remaining unwaveringly committed to banning asbestos and funding research for a cure has gained momentum and recognition on The Hill. You have been heard! Thank you for your continued support of ADAO, ‘the voice of the victims,’ as together, change is possible.”

Please join the mesothelioma community on Monday and light your candle in memory of those whose battle has sadly ended, and make plans to celebrate the life of a meso warrior on January 4.

The Sydney Morning Herald has reported that biotechnology company Bionomics is set to begin a Phase II clinical trial of its anti-cancer drug, BNC105, at up to 12 cancer treatment centers across Australia. The company plans to include 60 mesothelioma patients in the drug trial.

According to the Herald report, this Phase II study comes on the heels of a successful Phase I clinical trial of Bionomics’ BNC105, which was administered to patients with advanced cancers at Peter MacCallum Cancer Centre, the Western Hospital, Austin Health and the Royal Melbourne Hospital.

Bionomics has contacted the Australasian Lung Cancer Trials Group (ALTG) and the NHMRC Clinical Trials Centre (CTC) to conduct the clinical trial. No date has yet been set for the trial start.

BNC105 is described as “a novel anti-cancer agent which is both a vascular disrupting agent (VDA) and an inhibitor of cancer cell proliferation.”

For more information about the Phase II clinical trial of BNC105 for mesothelioma patients in Australia, email clinicaltrials@bionomics.com.au. You can also find out more information about ongoing clinical trials in Australia and New Zealand by visiting the Australian New Zealand Clinical Trials Registry (ANZCTR) at www.anzctr.org.au.

The construction of a large overpass project in Fort Myers, Fla., area has come to a halt while Florida Department of Environmental Protection (FDEP) investigators test suspicious materials found on the worksite. The Summerlin Road overpass in Lee County is Southwest Florida’s largest road project, according to NBC-2 News. During a recent site visit, county transportation leaders spotted the material, which they believe contains asbestos, an environmental hazard. Asbestos fibers can cause serious illness, including asbestosis, a severe scarring of the lungs, and mesothelioma, a deadly cancer that affects the lining of the chest and lungs, or, more rarely, the abdomen or heart.

NBC-2 quotes John Iglehart from the FDEP as saying, “We take asbestos very seriously because it is such a human health threat.”

The suspected asbestos-containing material was observed among some filler materials on the work site. It is believed the material is leftover water pipes recycled from another project. If the pipes contain asbestos, it will mean they ought to have been properly disposed of, using protective measures in handling a hazardous material. It is illegal to recycle these types of materials and use them in other projects.

According to NBC-2, the project’s lead contractor, Posen Construction, may have improperly disposed of the pipes and then used them in the recycled fill material. The news agency says this is not the first time Posen has been cited for such environmental violations. In fact, they report, Posen Construction has been cited at least 24 times since July 2008 and fined at least $12,000.

The Florida DEP is currently testing the chunks of suspicious material obtained from the job site, but a FDEP investigator says a surface inspection reveals fibers consistent with asbestos. Asbestos becomes dangerous when it is released into the air and inhaled, which is a possibility if the materials on the site are crushed or broken.

Until FDEP makes a final determination, the $25-million project is on hold. If asbestos is found, NBC-2 reports, “the next step will be determining who is responsible, how it happened and most immediately – cleaning it up.”

Read the full story and watch a video of the news coverage.

A series of stories in the Daily Inter Lake, which serves Northwest Montana and which initially broke the story about widespread asbestos contamination of the town of Libby, Mont., in 1999, is featuring a series of stories about the town. The feature is related to a recent town hall style meeting organized by the University of Montana, which is seeking to get clarification from the U.S. Environmental Protection Agency (EPA) about just how much toxicity remains in the town.

The town hall meeting, which was held Dec. 6, featured a panel discussion about the deadly fallout from town’s vermiculite asbestos mine, which was operated for years by W.R. Grace & Company. Even those who didn’t work in the mine were exposed to asbestos, as dust from the mine covered the surrounding area, railroad tracks and roads used to transport the materials. Asbestos was even used as filler for gardens and ballparks.

According to the Daily Inter Lake report, more than 300 deaths have been linked to asbestos exposure from the vermiculite mine. A special health clinic established by the EPA after the story broke about the widespread asbestos disease affecting Libby area residents is currently treating about 2,800 patients with varying levels of asbestos disease.

Dr. Brad Black, who oversees patient care at the clinic, called the Center for Asbestos Related Disease (CARD), says it’s impossible to really determine how many people have been affected by asbestos in Libby, because around 80,000 people “came and went in Libby while the mine was operating,” the paper reports.

Because of the long latency period of asbestos disease – which includes conditions such as asbestosis, a severe scarring of the lungs that impedes lung function and limits breathing, and mesothelioma, a deadly cancer that affects the lining of the lungs or, more rarely, the abdomen or heart – which is sometimes as long as 30 or 40 years, Black estimates cases will continue to emerge well into the future, through the year 2030.

Since the asbestos contamination of Libby was brought to light, it has been a roller-coaster ride for area residents. The EPA has spent more than $206 million to date to clean up residential and commercial properties. In June, Libby was declared a public health emergency, which is the first time the agency has made such a determination under the 1980 Superfund law. This will allow more money to be put into the town’s cleanup efforts.

However, there are still lingering questions about just how effective these cleanup efforts really are. The EPA has divided the Libby Superfund site into eight geographical units, and has so far only completed cleanup on two of those units. However, some scientists argue that the type of asbestos affecting Libby – amphibole – is much more toxic than chrysotile asbestos, and that cleanup efforts are being conducted using old research on the wrong type of asbestos.

The Daily Inter Lake reports that EPA officials have admitted they are using toxicology assessments from 1985 data on less toxic asbestos, not Libby asbestos. This is despite a more recent study completed in 2003, which “established exposure benchmarks for mesothelioma and lung cancer based on asbestos epidemiologic studies,” the news agency reports.

According to the paper, federal government risk assessment standards say cleanup efforts are necessary when there is evidence of one death per 10,000 people. In Libby, where the population is around 10,000 people, there have already been 31 deaths just from mesothelioma. This doesn’t even take into account the suffering and death from other asbestos-related diseases.

The asbestos contamination also has been a see-saw on the legal front. In May, W.R. Grace & Co. and several of its top leaders were acquitted of criminal charges related to the widespread asbestos disease affecting its residents. Nearly 800 people still have pending civil suits against the company, which have been delayed by bankrupcy claims on the part of Grace. The company is expected to emerge from bankruptcy in January.

Testimony resulting from the bankruptcy trial in October revealed that there is a 59 percent probability of death for Libby residents exposed to asbestos dust.

“No other place on the planet has that,” the Daily Inter Lake quotes attorney John Heberling, who is representing asbestos clients.

This is a fascinating and tragic series of stories, and I encourage you to visit the Daily Inter Lake online to read the full series. It includes a feature on Gayla Benefield, who, along with compatriot Les Skramstad, began the campaign to expose the Libby contamination and lobby for justice for the town. Here are just a few of the links:

What is a safe dose for Libby?
What’s next for Libby?
Asbestos victims try to stay upbeat
Advocate’s work for asbestos victims spans 35 years
Grace lawsuit claimants still in limbo

There is an ongoing debate in the United Kingdom about whether the country’s Labour department is responsible for compensating workers suffering from pleural plaques. In 2007, the Law Lords ruled that pleural plaques did not qualify for worker’s compensation. Pleural plaques are areas of fibrosis, or scar tissue caused by exposure to asbestos. They are usually found on the inside of the diaphragm.

A champion for the rights of workers who have developed pleural plaques as a result of exposure to asbestos in the workplace is Jarrow MP Stephen Hepburn. In a meeting at the House of Commons on Nov. 27, he argued the issue of pleural plaques is “immensely important” to workers and pensioners, and insisted it is the duty of members of both sides of the House to overturn the “disgraceful and unjust decision by the Law Lords to bar this terrible illness from classification as a designated illness for compensation purposes,” according to a report in The Chronicle.

Hepburn also told the Commons that pleural plaques sufferers are 1,000 times more likely to develop a more serious form of asbestos-related cancer. Mesothelioma is a deadly form of cancer that affects the lining of the chest cavity and lungs (pleural) or the lining of the stomach (peritoneal). It may also rarely affect the lining of the heart (pericardial). There is no known cure for mesothelioma.

During the heated debate, The Daily Mirror reports that statistics were revealed that show mesothelioma rates in the UK have nearly doubled in 10 years. According to the news source, hospitals treated 7,349 cases of mesothelioma in the past year, compared to 3,773 cases during the timeframe of 1998-99. The Mirror calls mesothelioma an “asbestos timebomb,” citing the disease’s long latency period.

The Mirror quotes Hepburn as saying, “We’re seeing the legacy of workers exposed to asbestos in the 1960s.”

The Asbestos Disease Awareness Organization has announced registration is now open for its Sixth Annual International Asbestos Awareness Conference. The conference is scheduled for April 9-11, 2010 in Chicago, Ill. This annual event brings together renowned doctors, scientists, researchers and asbestos victims and their families in a united forum for asbestos awareness, education and collaboration. Each year the event coincides with national Asbestos Awareness Day, April 1.

In addition to providing educational information, advocacy support, a special remembrance ceremony and networking opportunities, each year the conference honors individuals or organizations that have demonstrated outstanding work and dedication to asbestos awareness related activities. ADAO has announced this year’s honorees:

• The Honorable Richard Durbin, United States Senator – Tribute of Hope Award
• Dr. Hedy Kindler – Selikoff Lifetime Achievement Award
• Center for Asbestos Related Disease (CARD), Libby, Montana – Tribute of Unity Award
• Fernanda Giannasi – Tribute of Inspiration Award
• June Breit (posthumous) – The Alan Reinstein Memorial Award

At the conference, the ADAO also will announce the recipient of the Warren Zevon “Keep Me in Your Heart” Memorial Tribute.

“I’ve received countless requests for my father’s song, ‘Keep Me in Your Heart,’ to be used at memorials for asbestos victims,” said ADAO Spokesperson Jordan Zevon. Jordan is the son of Warren Zevon, acclaimed singer and songwriter, who died of mesothelioma in 2003. “You can imagine how proud it makes me to know that my father’s Grammy winning song has touched so many families, but it is bittersweet because of the nature of those requests. In his honor, I will continue to work with ADAO to ban asbestos to spare future generations from the same fate.”

“As we get closer to a full asbestos ban, we are encouraged, yet simultaneously reminded that the reverberations of asbestos exposure can last decades,” said Linda Reinstein, Co-Founder and Executive Director of ADAO. “Our annual conferences drive home the importance of the need for increased awareness, education and research.”

Additional conference details are available on the ADAO web site, and online registration is available at http://www.adao.eventbrite.com.

The International Asbestos Awareness Conference is made possible with the support and collaborative efforts of the Barbara Ann Karmanos Cancer Institute and the International Ban Asbestos Secretariat (IBAS).

There are tons of new educational, outreach and awareness materials now available from the Mesothelioma Applied Research Foundation. If you do not already subscribe, the latest issue of the Foundation’s “Breath of Hope” newsletter is available. The latest issue provides a recap of activities during the International Symposium on Malignant Mesothelioma, which was held in Washington, D.C., in June. The newsletter includes photos from the event and a wealth of information about research and advocacy, as well as personal stories from mesothelioma patients and their families and caregivers.

This issue is available to download online. If you are having trouble downloading the newsletter, or just want an original hard copy, please let me know. I have some extra copies of the newsletter graciously provided to me by the Meso Foundation that I would be happy to send to you. You can also subscribe by visiting the Meso Foundation online at www.curemeso.org. There also is an archive of past newsletters on the site.

Another exciting resource available at the Meso Foundation web site is a video library of presentations from the Symposium. There were so many great speakers, and this is a truly valuable resource for excellent educational information. The video library also provides access to the slides used by conference speakers. There really is a fantastic amount of information here on topics ranging from Advocacy & Advancing the Mission, to Integrative Medicine, Nutrition, Cancer and the Immune System, Peritoneal Mesothelioma, Pleural Mesothelioma, Clinical Trials and much more.

While on the Meso Foundation web site, please join their online Mesothelioma Community, which will allow you to exchange information with others through a Bulletin Board, as well as read a number of blogs touching on a wide variety of topics. You can also subscribe to an e-newsletter that will keep you informed about all the great work the Meso Foundation is accomplishing in its mission to find a cure for mesothelioma.

If you have any questions or need assistance, you may call the Meso Foundation at (805) 456-7272 or call them toll-free at 877-END-MESO.