UK Justice Secretary Jack Straw

Earlier this month, Chris Hahn, executive director of the Mesothelioma Applied Research Foundation (Meso Foundation) expressed his support for the recent announcement from the UK that it plans to not only endorse compensation for mesothelioma victims, but to promote research and treatment. In a news release, Hahn praised the U.K. for its recognition “that society’s obligation and moral responsibility to remedy the tragic legacy of decades of asbestos use requires funding research to develop effective medical treatments.” Then, he asked the all-important question: “Will the United States follow?”

Hahn’s praise and plea followed remarks by the U.K.’s Lord Chancellor and Secretary of State for Justice, Jack Straw, who has been outspoken about the government’s role in caring for workers harmed by asbestos on the job.  Straw issued a statement Feb. 25, 2010, in response to an ongoing debate over the government’s decision on the question of compensation for pleural plaques.

Although pleural plaques, which are small areas of fibrosis in the pleura of the lung caused by asbestos exposure, indicate that a person has been exposed to asbestos, they generally do not cause any significant change in lung function. As a result, the Law Lords on Oct. 17, 2007 determined that people who have pleural plaques, but no other asbestos-caused illness, are not eligible for any compensation for medical treatment or other financial claims. The debate over pleural plaques sparked a national debate about asbestos disease.

Although subsequent research did not provide enough evidence to overturn the Law Lords’ ruling, it has provided significant information about asbestos disease, including mesothelioma and lung cancer. The government also is establishing a number of policies to make it easier for those who are diagnosed with mesothelioma or serious asbestos disease to receive compensation more quickly. Additionally, the research has encouraged the UK government to take a stronger stand on mesothelioma research and treatment.

According to Straw’s statement, “The fact that the UK has one of the highest rates of death from mesothelioma in the world is a legacy of our industrial heritage and the part that asbestos played in it. Just as the UK was a global leader in the asbestos industry, we must now become a global leader in research into asbestos-related disease.”

The government of the UK is calling for the creation of a National Centre for Asbestos-Related Disease, which will be a “collaborative network of funded researchers whose core purpose would be to advance medical research into the prevention, cure and alleviation of asbestos-related disease – primarily mesothelioma,” according to Straw. He said the insurance industry has pledged £3 million toward this research effort.

Benefits of such a concentrated and cooperative research and treatment program would not only benefit mesothelioma patients, but also would significantly reduce the costs of litigation, death and disability benefits, and health care costs, Hahn points out.

“This is exactly what the Mesothelioma Applied Research Foundation has been urging in the United States the past ten years,” Hahn says. “Mesothelioma and other asbestos-related diseases are a fundamental problem of social justice. And a just solution to that problem requires medical research to develop effective treatments to end the suffering and save lives. It is encouraging to see that the U.K. is getting it; we hope the U.S. will catch up soon.”

Read Hahn’s statement.

For more information, visit the Meso Foundation online at www.curemeso.org.

Linda Reinstein, co-founder of the Asbestos Disease Awareness Organization (ADAO) recently had the opportunity to participate on a panel discussion as part of an Occupational Safety & Health Administration (OSHA) public meeting. The event, held March 4 and called “OSHA Listens” was designed to solicit comments and suggestions from OSHA stakeholders on key issues facing the agency. As a representative of ADAO, Ms. Reinstein was able to address OSHA leaders about the urgency and importance of a complete ban on asbestos. The meeting was held in Washington, D.C.

The program was designed to help OSHA learn about key areas that will enhance and encourage the efforts of employers, workers and unions to identify and address workplace hazards. The agency asked for feedback about emerging unaddressed health and safety issues, how to improve efforts to engage stakeholder in program and initiatives, and for help in identifying priorities.

Ms. Reinstein, who lost her husband Alan to mesothelioma in 2004 as a result of his exposure to asbestos in the workplace, was joined on the panel by others who had lost loved ones to workplace hazards. Overseeing the panel discussion was David Michaels, Assistant Secretary, OSHA; and Deborah Berkowitz, Chief of Staff, OSHA.

“ADAO urges OSHA to move from helping to control to preventing asbestos exposure, and we urge you to help disseminate other government agencies’ information … to increase awareness and support for best practices and encourage compliance,” Reinstein told the panel. She pointed out that OSHA’s own web site estimates 1.3 million employees in construction and general labor have faced “significant asbestos exposure.”

Reinstein also took the opportunity to ask OSHA’s leaders to support pending legislation that calls for a complete ban of asbestos in the U.S.

“Clearly, one life lost to asbestos disease is tragic, but hundreds of thousands of lives lost is unconscionable,” she said. “OSHA has the opportunity – and the responsibility – to protect Americans from these preventable diseases. We count on you to push this forward, and we would encourage and ask that Secretary (of Labor Hilda L.) Solis support asbestos ban legislation to prevent asbestos-caused diseases to protect workers and their families on behalf of the tens of thousands who have lost their life.”

Transcripts of the meeting are available on the OSHA web site.

A web cast of the meeting, including Panel 1, which features Ms. Reinstein, also is available by visiting OSHA online.

A story published by the New York Times reports thousands of rescue and cleanup workers who were exposed to the toxic air at Ground Zero after the 9/11 tragedy at the World Trade Center have reached a settlement agreement with the city over damage to their health. According to the Times, the city has agreed to pay out up to $657.5 million to about 10,000 plaintiffs in the case.

The settlement agreement has been in the works for about two years, taking place among a great deal of confusion and disagreement about the city’s responsibility for injured workers. The city had claimed it was immune because injuries occurred during a national emergency or civil defense situation. However, injured workers and their families argued they were employed by the city and entitled to compensation as they would be for any injury incurred on the job.

According to the Times report, 95 percent of the plaintiffs in this case must accept the terms of the settlement for it to take effect. Each plaintiff’s case will then be examined individually to determine how much compensation that person will receive, which lawyers estimate could run anywhere from a few thousand dollars to as much as $1 million. Individual compensation will depend on the severity of illness and level of exposure to contaminants at the World Trade Center site.

A variety of health screening and tracking programs were established in the days and months following the September 11 tragedy. Workers and others who simply lived and worked near the disaster site began complaining of a variety of illnesses, especially respiratory problems. There is an official World Trade Center Medical Monitoring and Treatment Program, as well as studies conducted by the New York Fire Department and other organizations.

Some health problems presented immediately following exposure to the site, such as respiratory distress, while others are only just showing up in those who worked at the site. It is now known that the Ground Zero site was contaminated with asbestos at levels at least two times higher than the Environmental Protection Agency’s “safe” level. Because of the long latency period between exposure to asbestos and the development of mesothelioma – an average of between 10 and 50 years – the true effect of asbestos exposure may not be known for years to come.

Some of the plaintiffs involved in the current settlement are not yet ill, but fear they will develop illnesses in the future as a result of their exposure to the toxins like asbestos. According to the Times, the settlement provides a $23.4 million insurance policy to cover possible future claims.

Not three months ago, on Dec. 31, it was announced that football and television star Merlin Olsen had been diagnosed with mesothelioma. Today I learned that he has passed away, a victim of this horrible disease that lies in wait to kill. He was only 69 years old.

Olsen was a star defensive lineman for the Los Angeles Rams football team, who went on to a television acting career. He played Jonathan Garvey on the series Little House on the Prairie and was the title character of Father Murphy. He also appeared on Fathers and Sons and Aaron’s Way, and filled the role of sportscaster at both CBS and NBC.

Online celebrity news magazine TMZ broke the news in December that Olsen and his family had filed a lawsuit against several companies, including NBC Studios, NBC Universal and 20th Century Fox Film Corporation, claiming they were responsible for exposing him to asbestos, which causes mesothelioma. Also named in the suit are Sherwin Williams and Lennox Industries, whose products Olsen says he was exposed to during jobs in his youth.

Read his obituary in the Los Angeles Times.

On December 8, 2009, his alma mater, Utah State University, where he was selected twice as an NCAA All-American, among other honors, announced it would name its football field after him – Merlin Olsen Field. How truly sad that he will never see a team take the field that now bears his name. Watch the tribute video created by the university at the announcement:

What a sad loss of a man who truly seemed to care genuinely for others, for his family and his community. He will be genuinely missed.

The Mesothelioma Applied Research Foundation (Meso Foundation) announced registration is now open for the 2010 International Symposium on Malignant Mesothelioma. The event is set for June 10-12 in Washington, D.C. The annual event includes science presentations from leading mesothelioma experts, breakout sessions for patients, families/caregivers and bereaved, and many community and social activities.

A special part of the Symposium activities is Advocacy Day, during which meso patients and their families travel to Capitol Hill to meet with their Senators and Representatives to ask for increased funding for mesothelioma research and treatment, and for the complete ban of asbestos in the United States.

I had the pleasure of attending this event last year and it is truly an amazing experience. There are touching tributes to those who have lost the fight against mesothelioma, and inspiring stories from those who are winning this battle. You can also gain so much knowledge from the many physicians and researchers who present programs. Many of them are open and available to talk with attendees throughout the conference as well.

You can find more information, including a video and archives of last year’s Symposium presentations, at www.curemeso.org/symposium. You can also view the agenda and register at the web site.  Or, call the Meso Foundation toll free at 877-363-6376.

Variety magazine, famous for entertainment reporting, announced this week that famed columnist Army Archerd will be honored posthumously by the Asbestos Disease Awareness Organization (ADOA) at its Sixth Annual International Asbestos Conference on April 10 in Chicago. Archerd will receive the organization’s inaugural Warren Zevon Keep Me in Your Heart memorial tribute.

The award was established in memory of singer-songwriter Warren Zevon, author of such hits as “Werewolves of London,” who died of mesothelioma in 2003. Mesothelioma is a deadly form of cancer that is linked to asbestos exposure. It most often affects the lining of the chest and lungs, but may also affect the lining of the abdomen or, more rarely, the heart.

Warren Zevon’s son, Jordan Zevon, is involved with ADAO as its spokesman. Variety quotes him as saying, “My father would be enormously honored to have had the opportunity to pay tribute to Army Archerd.”

Archerd was a columnist for Variety for more than 50 years, penning his “Just for Variety” column until September 2005. Even after he retired the famous column, Archerd worked as a blogger for Variety. He was one of the most popular and well-respected writers in the entertainment industry, and broke many exclusive stories. He died of mesothelioma on Sept. 8, 2009. It is believed he was exposed to asbestos during his service in the Navy during World War II.

Variety quotes his widow, Selma, as saying, “The tragedy of asbestos disease is a story that unfortunately continues to be written for many families. I hope that Army’s legend of making a difference through his work can help give an even louder voice to the efforts to write its end.”

ADAO was founded by asbestos victims and their families in 2004. It seeks to give asbestos victims and concerned citizens a united voice to raise public awareness about the dangers of asbestos exposure. ADAO’s mission includes supporting global advocacy and advancing asbestos awareness, prevention, early detection, treatment, and resources for asbestos-related disease.

For more information about ADAO or the annual Asbestos Conference, visit ADAO online at www.asbestosdiseaseawareness.org.

This week the Asbestos Disease Awareness Organization (ADAO) praised Senate leaders for a resolution that declares the first week of April 2010 as “National Asbestos Awareness Week.” This is the sixth year in a row that the ADAO has been active in working with Senate leaders to secure a national resolution in recognition of the dangers of asbestos.

The resolution is sponsored by Sen. Max Baucus (D-Mont.). Co-sponsors and key supporters are Sen. Barbara Boxer (D-Calif.), Sen. Richard Durbin (D-Ill.), Sen. Dianne Feinstein (D-Calif.), Sen. Johnny Isakson (R-Ga.), Sen. Patrick Leahy (D-Vt.), Sen. Patty Murray (D-Wash.), Sen. Harry Reid (D-Nev.) and Sen. Jon Tester (D-Mont.).

A news release from the ADAO quotes the organization’s Co-Founder and Executive Director Linda Reinstein as saying, “We are grateful to the U.S. Senate to have the opportunity to help raise the level of public awareness about the prolific dangers of asbestos and further unite doctors, scientists, and public health advocates during National Asbestos Awareness Week for this important effort. During the past six years, ADAO has seen the progress and indeed, this confirms what Americans deserve and want. We know asbestos prevention and education will save lives and dollars.”

The ADAO was founded by asbestos victims and their families in 2004. It seeks to give asbestos victims and concerned citizens a united voice to raise public awareness about the dangers of asbestos exposure. ADAO’s mission includes supporting global advocacy and advancing asbestos awareness, prevention, early detection, treatment, and resources for asbestos-related disease.

Asbestos is a known human carcinogen and exposure can cause asbestos-related diseases, including mesothelioma, lung cancer and asbestosis. According to the ADAO news release, studies estimate that during the next decade 100,000 workers around the world will die of an asbestos-related disease. This equals 30 deaths per day.

The ADAO annually holds a conference in conjunction with National Asbestos Awareness Week. The Sixth Annual International Asbestos Conference is set for April 10, 2010, in Chicago, Ill.

For more information about ADAO or for conference registration, visit ADAO online at www.asbestosdiseaseawareness.org.

The G. R. Little Theatre and the north and south wings of the G.R. Little Library on the campus of Elizabeth City State University in Elizabeth City, NC, are closed until mid-April while crews remove asbestos from the facilities. According to a report by staff writer Kristin Pitts, which appears in the Daily Advance, the asbestos removal is part of a planned renovation that will make the existing facilities more energy efficient. The university is in compliance with U.S. Environmental Protection Agency (EPA) guidelines for safe asbestos removal.

According to the news report, university spokeswoman Kesha Williams says that other ECSU buildings could potentially contain asbestos, as the material was commonly used in construction prior to the 1970s. However, the material is generally not dangerous unless it is disturbed. The university was proactive in securing an asbestos abatement company to safely remove the existing asbestos during its remodeling of the library and theatre buildings.

During processes like remodeling and demolition, materials containing asbestos may release microscopic fibers that can be inhaled into the lungs. Inhaled asbestos fibers may cause asbestosis, a severe scarring of the lungs, or mesothelioma, a deadly cancer that may affect the lining of the chest and lungs, the abdomen, or, more rarely, the heart.

The news report says Clean Air Environmental, Inc., a Winston-Salem based company, has been contracted to remove the asbestos from the library and theatre buildings. Project manager Omar Martinez told the paper that the company is currently completing the second phase of what it expects will be a three-part asbestos removal process. He told the reporter that the company is using “negative airs and amended water to capture any [asbestos] fibers” and workers double-bag hazardous materials and properly dispose of the hazardous waste to ensure the safety of workers, students and others on campus in the area of the project.

Energy-saving equipment planned for the library and theatre buildings include new lighting fixtures and an upgraded heating, ventilation and air conditioning unit.

Health officials in South Korea are recording significant increases in asbestos-related diseases among the country’s population, including asbestosis, lung cancer and malignant mesothelioma. According to a report by TIME Magazine, the number of mesothelioma diagnoses increased from just 12 in 2001, to 55 new cases in 2007, the most recent year that data is available. It is, “in public health terms, a notable increase,” TIME quotes Paek Dom-yung, an occupational medicine professor at Seoul National University.

While South Korea enjoyed a boom in urban development from the 1960s through the 1980s, it is becoming evident the country’s lax rules on asbestos regulation may have exposed millions of people to health hazards. According to the TIME report, Seoul did not place a full ban on asbestos manufacturing, import and use until last year. It also had no regulations in place for the safe removal of existing asbestos during demolition and remodeling projects.

Now, trade and labor unions in South Korea are calling for the government to take responsibility for workers it knowingly exposed to deadly asbestos, and who are now suffering as a result.

Due to the long latency period between exposure and the development of mesothelioma or other asbestos diseases – which can be as long as 20-50 years – South Korean health officials are bracing for a future epidemic. It is predicted that the incidence of mesothelioma diagnoses in the region will not peak until around 2030.

I am super-late in posting this, but I wanted to share some photos from Heather Von St. James and family’s annual Lung Leavin’ Day celebration. Those of you who have followed Heather’s story here on myMeso know that this is the day that commemorates Heather’s decision to undergo an extrapleural pneumonectomy to remove her mesothelioma tumor.

Prior to the surgery, which removed Heather’s lung and part of her diaphragm, along with the cancer, her family gathered for the first Lung Leavin’ Day. They wrote their fears on plates and smashed them in the fire – a symbolic conquering! Today, Heather celebrates four years cancer free! The 4th Annual Lung Leavin’ Day Celebration was held Feb. 6, and Heather reports that more than 60 people joined her for the festivities. What a wonderful blessing to see Heather healthy and happy, surrounded by friends and loved ones!

Those of us who could not be there in person were there in spirit. Even our good friend Debbie Brewer celebrated “across the pond” in the U.K. I substituted a paper plate and the fireplace for china and a bonfire, but the sentiment was the same nonetheless. We love you Heather, and look forward to many more Lung Leavin’ Days in the future!

Pictured below is a photo of the fire, surrounded by broken plate shards.

Heather lit a candle in tribute to those who have lost their battle with mesothelioma, as well as in honor of those who are still fighting the battle. The names of the meso warriors were posted.