Archive for the ‘Organizations’ Category

Detroit demolition plan halted due to asbestos concerns

12 Apr 2010 by Wendi Lewis under Legal, News, Organizations

detroit 100x100 Detroit demolition plan halted due to asbestos concernsRepresentatives from the City of Detroit, Michigan, meant well, but nearly put lives in danger recently with plans to demolish around 3,000 dilapidated homes and other buildings in a blighted area. The project, whose ultimate goal was to remove 10,000 dangerous abandoned buildings over the next four years and eliminate risks like collapse, fire and disease, was featured in the local newspaper, the Detroit Free Press. As it turned out, someone from the state Department of Natural Resources and Environment was reading, and the story raised a red flag.

After a quick investigation, DNRE spokesman Robert McCann told the Free Press the agency discovered the City had not completed required inspections on the properties scheduled for demolition. The City also had not notified the state – which is required by law – of the planned demolition. The planned project was halted April 5, and City officials met with DNRE representatives to learn what they should do.

According to the Free Press, representatives from the City said they were unaware they were violating any federal regulations, and said the City has not had a history of inspecting buildings for the presence of before demolition under past administrations. The current Mayor is Dave Bing.

Some demolition occurred before DNRE officials were able to call a halt; however, subsequent testing did not find any present. The project is under the direction of the City’s Buildings and Safety Engineering Department. The houses planned for demolition are located in southwest Detroit. The City still plans to demolish 3,000 structures by the end of this year, and 10,000 structures during the next four years.

Federal regulations require that businesses or individuals planning demolition first test the structure for the presence of , remove any that is found using approved abatement procedures to ensure the safety of workers and the public, and provide a 10-day notice to the DNRE before beginning demolition. Violations could incur fines of up to $27,500 per day, and jail time. It was not noted in the Free Press story if the City is in danger of being prosecuted for its violations.

However, public interest in the story did raise awareness about the dangers of asbestos exposure, which can result in , a deadly cancer that affects the lining of the chest and lungs, the lining of the abdomen, or the lining of the heart. As a result of reader interest, the newspaper published a helpful Q&A about asbestos exposure the following day.


Mayor Todd Strange declares Asbestos Awareness Week in Montgomery, AL

6 Apr 2010 by Wendi Lewis under Events, News, Organizations, People

for webMontgomery Mayor Todd Strange presented a proclamation today declaring April 1-7 as Awareness Week in the city of Montgomery, Alabama. The proclamation supports National Awareness Week, as established by Senate Resolution 427.

It is the purpose of Awareness Week to raise public awareness about the prevalence of and the dangers of asbestos exposure in the United States and around the world. Microscopic fibers can be inhaled or ingested, and imbed themselves in the body where they can cause diseases such as , a severe scarring of the lungs, and , a deadly cancer that can affect the chest and lungs, the abdomen or the heart.

The U.S. Congress has recognized a National Awareness Day or Week for the past six years. The awareness effort is a project of the Disease Awareness Organization (ADAO), which is the largest organization in the United States serving as the voice of victims. The ADAO lobbies for the complete ban of and -containing products in the U.S. It is estimated that within the next decade 100,000 workers around the world will die of an -related disease. That equals 30 deaths each day.

For more information, visit ADAO online.


Asbestos is no joke – Asbestos Awareness Week begins today

1 Apr 2010 by Wendi Lewis under Events, News, Organizations, People

asbestos fibers 2Traditionally, April 1 has been designated by the Disease Awareness Organization (ADAO) as Awareness Day. The day has been officially recognized by U.S. Congress proclamation for the past six years. In recent years, the awareness effort has expanded, and now the first week of April is officially designated as Awareness Week. The theme for the awareness week is “Knowledge is stronger than .”

On March 26, the ADAO praised the U.S. Senate for passage of the sixth annual resolution establishing National Awareness Week. Senate Resolution 427 also urges the Surgeon General to warn and educate Americans about the severe hazards of asbestos exposure.

The ADAO is the largest organization in the United States serving as the voice of victims, and lobbies for the complete ban of and -containing products in the U.S. exposure is linked to the development of a number of diseases, including , a severe scarring of the lungs; and , a deadly cancer that affects the lining of the lungs and chest, abdomen or the heart. According to statistics compiled by ADAO, in the next decade it is estimated that 100,000 workers around the world will die of an -related disease. This equals 30 deaths each day.

ADAO co-founder and CEO Linda Reinstein said, “We are grateful to the U.S. Senate for unanimously passing S. Res. 427 that will increase public awareness about , a known human carcinogen. For the past six years, ADAO has seen that a week of awareness enables agencies, institutions and organizations to promote regulatory compliance and enforcement. Americans deserve and want to know how to prevent in their homes or in the workplace.”

Awareness Week 2010 will be held April 1-7. Visit ADAO online for more information about and its commercial use; how to prevent exposure in homes, schools and workplaces; early warning symptoms and medical treatment options; and to find out more about why is still not a banned product in the U.S. and how it is used in common household products.


Meso Foundation commends U.K. efforts on mesothelioma, urges U.S. to follow suit

17 Mar 2010 by Wendi Lewis under Legal, News, Organizations, Research/Treatment
UK Justice Secretary Jack Straw

UK Justice Secretary Jack Straw

Earlier this month, Chris Hahn, executive director of the Applied Research Foundation (Meso Foundation) expressed his support for the recent announcement from the UK that it plans to not only endorse compensation for victims, but to promote research and treatment. In a news release, Hahn praised the U.K. for its recognition “that society’s obligation and moral responsibility to remedy the tragic legacy of decades of use requires funding research to develop effective medical treatments.” Then, he asked the all-important question: “Will the United States follow?”

Hahn’s praise and plea followed remarks by the U.K.’s Lord Chancellor and Secretary of State for Justice, Jack Straw, who has been outspoken about the government’s role in caring for workers harmed by on the job.  Straw issued a statement Feb. 25, 2010, in response to an ongoing debate over the government’s decision on the question of compensation for pleural plaques.

Although pleural plaques, which are small areas of fibrosis in the pleura of the lung caused by asbestos exposure, indicate that a person has been exposed to , they generally do not cause any significant change in lung function. As a result, the Law Lords on Oct. 17, 2007 determined that people who have pleural plaques, but no other -caused illness, are not eligible for any compensation for medical treatment or other financial claims. The debate over pleural plaques sparked a national debate about disease.

Although subsequent research did not provide enough evidence to overturn the Law Lords’ ruling, it has provided significant information about disease, including and . The government also is establishing a number of policies to make it easier for those who are diagnosed with or serious disease to receive compensation more quickly. Additionally, the research has encouraged the UK government to take a stronger stand on research and treatment.

According to Straw’s statement, “The fact that the UK has one of the highest rates of death from in the world is a legacy of our industrial heritage and the part that played in it. Just as the UK was a global leader in the industry, we must now become a global leader in research into -related disease.”

The government of the UK is calling for the creation of a National Centre for -Related Disease, which will be a “collaborative network of funded researchers whose core purpose would be to advance medical research into the prevention, cure and alleviation of -related disease – primarily ,” according to Straw. He said the insurance industry has pledged £3 million toward this research effort.

Benefits of such a concentrated and cooperative research and treatment program would not only benefit patients, but also would significantly reduce the costs of litigation, death and disability benefits, and health care costs, Hahn points out.

“This is exactly what the Applied Research Foundation has been urging in the United States the past ten years,” Hahn says. “ and other -related diseases are a fundamental problem of social justice. And a just solution to that problem requires medical research to develop effective treatments to end the suffering and save lives. It is encouraging to see that the U.K. is getting it; we hope the U.S. will catch up soon.”

Read Hahn’s statement.

For more information, visit the Meso Foundation online at www.curemeso.org.


Registration now open for Meso Symposium

11 Mar 2010 by Wendi Lewis under Events, News, Organizations

MARF_logo squareThe Applied Research Foundation (Meso Foundation) announced registration is now open for the 2010 International Symposium on Malignant . The event is set for June 10-12 in Washington, D.C. The annual event includes science presentations from leading experts, breakout sessions for patients, families/caregivers and bereaved, and many community and social activities.

A special part of the Symposium activities is Advocacy Day, during which meso patients and their families travel to Capitol Hill to meet with their Senators and Representatives to ask for increased funding for research and treatment, and for the complete ban of in the United States.

I had the pleasure of attending this event last year and it is truly an amazing experience. There are touching tributes to those who have lost the fight against , and inspiring stories from those who are winning this battle. You can also gain so much knowledge from the many physicians and researchers who present programs. Many of them are open and available to talk with attendees throughout the conference as well.

You can find more information, including a video and archives of last year’s Symposium presentations, at www.curemeso.org/symposium. You can also view the agenda and register at the web site.  Or, call the Meso Foundation toll free at 877-363-6376.


ADAO praises senate for asbestos awareness resolution

5 Mar 2010 by Wendi Lewis under Events, News, Organizations

adao logoThis week the Disease Awareness Organization (ADAO) praised Senate leaders for a resolution that declares the first week of April 2010 as “National Awareness Week.” This is the sixth year in a row that the ADAO has been active in working with Senate leaders to secure a national resolution in recognition of the dangers of .

The resolution is sponsored by Sen. Max Baucus (D-Mont.). Co-sponsors and key supporters are Sen. Barbara Boxer (D-Calif.), Sen. Richard Durbin (D-Ill.), Sen. Dianne Feinstein (D-Calif.), Sen. Johnny Isakson (R-Ga.), Sen. Patrick Leahy (D-Vt.), Sen. Patty Murray (D-Wash.), Sen. Harry Reid (D-Nev.) and Sen. Jon Tester (D-Mont.).

A news release from the ADAO quotes the organization’s Co-Founder and Executive Director Linda Reinstein as saying, “We are grateful to the U.S. Senate to have the opportunity to help raise the level of public awareness about the prolific dangers of and further unite doctors, scientists, and public health advocates during National Awareness Week for this important effort. During the past six years, ADAO has seen the progress and indeed, this confirms what Americans deserve and want. We know prevention and education will save lives and dollars.”

The ADAO was founded by victims and their families in 2004. It seeks to give victims and concerned citizens a united voice to raise public awareness about the dangers of asbestos exposure. ADAO’s mission includes supporting global advocacy and advancing awareness, prevention, early detection, treatment, and resources for -related disease.

is a known human carcinogen and exposure can cause -related diseases, including , and . According to the ADAO news release, studies estimate that during the next decade 100,000 workers around the world will die of an -related disease. This equals 30 deaths per day.

The ADAO annually holds a conference in conjunction with National Awareness Week. The Sixth Annual International Conference is set for April 10, 2010, in Chicago, Ill.

For more information about ADAO or for conference registration, visit ADAO online at www.asbestosdiseaseawareness.org.


Meso Foundation announces 2009 Grant Awards

8 Feb 2010 by Wendi Lewis under News, Organizations, Research/Treatment

MARF_logo squareThe Applied Research Foundation has announced the recipients of its 2009 Research Grant Awards. Through the generous contributions of its supporters, the Foundation was able to fund eight promising research projects. Executive Director Christopher E. Hahn reports that this is 60 percent more than the organization funded in 2008, when the Foundation, along with many charitable endeavors were beset by budget cuts resulting from the tough economic climate. In an email to Meso Foundation supporters, Hahn said he is hopeful the organization will soon be able to return to its target goal of funding 10 research projects per year.

Projects funded by the 2009 Grant Awards include vaccine studies offering hope of targeted treatment without drastic side effects; a novel investigation of the role of hormones in mesothelioma treatment; developing pathway targets synergistic with current first-line therapy Alimta/Cisplatin; and a study specifically focusing on improved detection and treatment of peritoneal mesothelioma (affecting the lining of the abdomen). Visit the Meso Foundation online for details of each study.

Each year, the Applied Research Foundation funds critically needed research to develop more effective treatments and ultimately, a cure. The Foundation has provided more than $6 million in grant funding, advancing science through promising studies around the world. The Meso Foundation’s funding objectives are to directly fund basic research and support clinical trials in worthy, peer-reviewed projects as well as to stimulate additional federal research funding opportunities.

The Applied Research Foundation is a nonprofit collaboration of patients and families, physicians, advocates, and researchers dedicated to eradicating the life-ending and vicious effects of .

You can help! There are many ways to get involved with the Applied Research Foundation. These include signing up to receive and respond to Action Alerts, which are specific campaigns for particular aspects of advocacy efforts; visiting your government officials to lobby for funding and awareness; volunteering in the meso community both locally and nationally; education; sharing your meso story; and donating to research.

For more information or to make a donation, visit the How You Can Help page at www.curemeso.org. The Meso Foundation is the recipient of the Charity Navigator “Four Star Charity” award and is recognized as the 2009 Great Nonprofits winner in the category of Cancer Fighters.


Facebook spreading mesothelioma awareness

12 Jan 2010 by Wendi Lewis under Organizations

facebook logo 100x100 Facebook spreading mesothelioma awarenessIf you are a fan of the social networking site Facebook, I hope that you are linked into the many survivors, supporters, groups and victims that are posting regularly there. If you don’t already have a Facebook page, setting one up is easy. Just go to www.facebook.com and the easy instructions on the home page will walk you through the steps. There are lots of new and improved privacy controls that you can set so that you don’t have to share more information than you want to. The nice thing about Facebook is that you accept and approve “friends” who can see your information.

MyMeso has a Facebook page, and I invite you to join us. You can visit our page here: http://tinyurl.com/ydl5xhd

Our good friend Debbie Brewer in the UK is online on Facebook. Just search for her name and you’ll come to her profile. She recently has started a Facebook fan page for Dr. Thomas Vogl, the groundbreaking researcher who is pioneering chemoembolization as a treatment for . Those familiar with Debbie’s story know that she has had great success with chemoembolization under Dr. Vogl’s care. You can visit his page here:  http://tinyurl.com/yeq5969

There also is a group set up to honor Debbie herself! You can find it by clicking this link: http://tinyurl.com/ychey9g

There is a special event planned for this Friday, Jan. 15, to celebrate Debbie, as well. “Raise a Glass to Debbie” asks everyone to raise a toast in honor of Debbie’s work as an activist for awareness and the fight for a cure. The event will occur between 8 p.m. and 11 p.m. and it doesn’t matter where in the world you are – the UK, the U.S., Australia, or any point on the globe – just join in!

There are so many wonderful support groups on Facebook. Two of these that my regular readers know I talk about a lot are the Disease Awareness Organization (ADAO) (find them here: http://tinyurl.com/ybhmn9j) and the Applied Research Foundation (http://tinyurl.com/ybv2uut).


Make a resolution to help cure mesothelioma

29 Dec 2009 by Wendi Lewis under News, Organizations, Research/Treatment

As 2009 draws to a close, the Mesothelioma Applied Research Foundation would like to remind those of us in the meso community that there is still much work to be done in the quest for a cure. The Meso Foundation has created a powerful two-minute video featuring the testimonies of victims and their families, including heartbreaking stories of loss, but also triumphant declarations of success against this dreaded cancer.

Please share the following video with your family and friends, and fellow warriors, and help raise awareness about the many lives touched by .

You can visit the Meso Foundation online to make a donation to help this organization fund reserach and continue providing patient services, or mail your contribution to:

Applied Research Foundation
P.O. Box 91840
Santa Barbara, CA 93190-1840

You may specify a loved one in whose memory the contribution is made, which will be acknowledged on the Tribute Wall, displayed at the annual International Symposium on Malignant in June 2010. Contributions over $100 also will be acknowledged in the Meso Foundation Annual Report. There is much more information online about how you can help. Please visit them today!


Join ADAO in lighting a candle in memory of those lost to mesothelioma

23 Dec 2009 by Wendi Lewis under Events, News, Organizations

candle1 100x100 Join ADAO in lighting a candle in memory of those lost to mesotheliomaOn Monday, December 28, the Asbestos Disease Awareness Organization (ADAO) will continue a longstanding tradition of lighting a candle in memory of those loved ones lost to . This is actually the first of two candlelighting ceremonies. The second will be held Monday, January 4, 2010, in honor of all the “warriors” still battling and conquering this devastating disease.

You are invited to add the name of your loved one to ADAO’s master list, either in memory or in honor of someone you love. This project is conducted in conjunction with the Association of Cancer Online Resources (ACOR). View the list, or email acor@AsbestosDiseaseAwareness.org to add a name to the list.

Linda Reinstein, ADAO’s co-founder, says, “Since founding ADAO in March 2004, thanks to the efforts for our all-volunteer organization, we have grown beyond our initial expectations. Our passion and commitment to preventing asbestos exposure, offering support and resources and remaining unwaveringly committed to banning and funding research for a cure has gained momentum and recognition on The Hill. You have been heard! Thank you for your continued support of ADAO, ‘the voice of the victims,’ as together, change is possible.”

Please join the community on Monday and light your candle in memory of those whose battle has sadly ended, and make plans to celebrate the life of a meso warrior on January 4.