The Mesothelioma Applied Research Foundation (Meso Foundation) announced registration is now open for the 2010 International Symposium on Malignant Mesothelioma. The event is set for June 10-12 in Washington, D.C. The annual event includes science presentations from leading mesothelioma experts, breakout sessions for patients, families/caregivers and bereaved, and many community and social activities.

A special part of the Symposium activities is Advocacy Day, during which meso patients and their families travel to Capitol Hill to meet with their Senators and Representatives to ask for increased funding for mesothelioma research and treatment, and for the complete ban of asbestos in the United States.

I had the pleasure of attending this event last year and it is truly an amazing experience. There are touching tributes to those who have lost the fight against mesothelioma, and inspiring stories from those who are winning this battle. You can also gain so much knowledge from the many physicians and researchers who present programs. Many of them are open and available to talk with attendees throughout the conference as well.

You can find more information, including a video and archives of last year’s Symposium presentations, at www.curemeso.org/symposium. You can also view the agenda and register at the web site.  Or, call the Meso Foundation toll free at 877-363-6376.

This week the Asbestos Disease Awareness Organization (ADAO) praised Senate leaders for a resolution that declares the first week of April 2010 as “National Asbestos Awareness Week.” This is the sixth year in a row that the ADAO has been active in working with Senate leaders to secure a national resolution in recognition of the dangers of asbestos.

The resolution is sponsored by Sen. Max Baucus (D-Mont.). Co-sponsors and key supporters are Sen. Barbara Boxer (D-Calif.), Sen. Richard Durbin (D-Ill.), Sen. Dianne Feinstein (D-Calif.), Sen. Johnny Isakson (R-Ga.), Sen. Patrick Leahy (D-Vt.), Sen. Patty Murray (D-Wash.), Sen. Harry Reid (D-Nev.) and Sen. Jon Tester (D-Mont.).

A news release from the ADAO quotes the organization’s Co-Founder and Executive Director Linda Reinstein as saying, “We are grateful to the U.S. Senate to have the opportunity to help raise the level of public awareness about the prolific dangers of asbestos and further unite doctors, scientists, and public health advocates during National Asbestos Awareness Week for this important effort. During the past six years, ADAO has seen the progress and indeed, this confirms what Americans deserve and want. We know asbestos prevention and education will save lives and dollars.”

The ADAO was founded by asbestos victims and their families in 2004. It seeks to give asbestos victims and concerned citizens a united voice to raise public awareness about the dangers of asbestos exposure. ADAO’s mission includes supporting global advocacy and advancing asbestos awareness, prevention, early detection, treatment, and resources for asbestos-related disease.

Asbestos is a known human carcinogen and exposure can cause asbestos-related diseases, including mesothelioma, lung cancer and asbestosis. According to the ADAO news release, studies estimate that during the next decade 100,000 workers around the world will die of an asbestos-related disease. This equals 30 deaths per day.

The ADAO annually holds a conference in conjunction with National Asbestos Awareness Week. The Sixth Annual International Asbestos Conference is set for April 10, 2010, in Chicago, Ill.

For more information about ADAO or for conference registration, visit ADAO online at www.asbestosdiseaseawareness.org.

The Mesothelioma Applied Research Foundation has announced the recipients of its 2009 Mesothelioma Research Grant Awards. Through the generous contributions of its supporters, the Foundation was able to fund eight promising research projects. Executive Director Christopher E. Hahn reports that this is 60 percent more than the organization funded in 2008, when the Foundation, along with many charitable endeavors were beset by budget cuts resulting from the tough economic climate. In an email to Meso Foundation supporters, Hahn said he is hopeful the organization will soon be able to return to its target goal of funding 10 mesothelioma research projects per year.

Projects funded by the 2009 Grant Awards include vaccine studies offering hope of targeted treatment without drastic side effects; a novel investigation of the role of hormones in mesothelioma treatment; developing pathway targets synergistic with current first-line therapy Alimta/Cisplatin; and a study specifically focusing on improved detection and treatment of peritoneal mesothelioma (affecting the lining of the abdomen). Visit the Meso Foundation online for details of each study.

Each year, the Mesothelioma Applied Research Foundation funds critically needed research to develop more effective treatments and ultimately, a cure. The Foundation has provided more than $6 million in grant funding, advancing mesothelioma science through promising studies around the world. The Meso Foundation’s funding objectives are to directly fund basic research and support clinical trials in worthy, peer-reviewed projects as well as to stimulate additional federal research funding opportunities.

The Mesothelioma Applied Research Foundation is a nonprofit collaboration of patients and families, physicians, advocates, and researchers dedicated to eradicating the life-ending and vicious effects of mesothelioma.

You can help! There are many ways to get involved with the Mesothelioma Applied Research Foundation. These include signing up to receive and respond to Action Alerts, which are specific campaigns for particular aspects of mesothelioma advocacy efforts; visiting your government officials to lobby for mesothelioma funding and awareness; volunteering in the meso community both locally and nationally; education; sharing your meso story; and donating to mesothelioma research.

For more information or to make a donation, visit the How You Can Help page at www.curemeso.org. The Meso Foundation is the recipient of the Charity Navigator “Four Star Charity” award and is recognized as the 2009 Great Nonprofits winner in the category of Cancer Fighters.

If you are a fan of the social networking site Facebook, I hope that you are linked into the many mesothelioma survivors, supporters, groups and victims that are posting regularly there. If you don’t already have a Facebook page, setting one up is easy. Just go to www.facebook.com and the easy instructions on the home page will walk you through the steps. There are lots of new and improved privacy controls that you can set so that you don’t have to share more information than you want to. The nice thing about Facebook is that you accept and approve “friends” who can see your information.

MyMeso has a Facebook page, and I invite you to join us. You can visit our page here: http://tinyurl.com/ydl5xhd

Our good friend Debbie Brewer in the UK is online on Facebook. Just search for her name and you’ll come to her profile. She recently has started a Facebook fan page for Dr. Thomas Vogl, the groundbreaking researcher who is pioneering chemoembolization as a treatment for mesothelioma. Those familiar with Debbie’s story know that she has had great success with chemoembolization under Dr. Vogl’s care. You can visit his page here:  http://tinyurl.com/yeq5969

There also is a group set up to honor Debbie herself! You can find it by clicking this link: http://tinyurl.com/ychey9g

There is a special event planned for this Friday, Jan. 15, to celebrate Debbie, as well. “Raise a Glass to Debbie” asks everyone to raise a toast in honor of Debbie’s work as an activist for mesothelioma awareness and the fight for a cure. The event will occur between 8 p.m. and 11 p.m. and it doesn’t matter where in the world you are – the UK, the U.S., Australia, or any point on the globe – just join in!

There are so many wonderful support groups on Facebook. Two of these that my regular readers know I talk about a lot are the Asbestos Disease Awareness Organization (ADAO) (find them here: http://tinyurl.com/ybhmn9j) and the Mesothelioma Applied Research Foundation (http://tinyurl.com/ybv2uut).

As 2009 draws to a close, the Mesothelioma Applied Research Foundation would like to remind those of us in the meso community that there is still much work to be done in the quest for a cure. The Meso Foundation has created a powerful two-minute video featuring the testimonies of mesothelioma victims and their families, including heartbreaking stories of loss, but also triumphant declarations of success against this dreaded cancer.

Please share the following video with your family and friends, and fellow mesothelioma warriors, and help raise awareness about the many lives touched by mesothelioma.

You can visit the Meso Foundation online to make a donation to help this organization fund mesothelioma reserach and continue providing patient services, or mail your contribution to:

Mesothelioma Applied Research Foundation
P.O. Box 91840
Santa Barbara, CA 93190-1840

You may specify a loved one in whose memory the contribution is made, which will be acknowledged on the Tribute Wall, displayed at the annual International Symposium on Malignant Mesothelioma in June 2010. Contributions over $100 also will be acknowledged in the Meso Foundation Annual Report. There is much more information online about how you can help. Please visit them today!

On Monday, December 28, the Asbestos Disease Awareness Organization (ADAO) will continue a longstanding tradition of lighting a candle in memory of those loved ones lost to mesothelioma. This is actually the first of two candlelighting ceremonies. The second will be held Monday, January 4, 2010, in honor of all the mesothelioma “warriors” still battling and conquering this devastating disease.

You are invited to add the name of your loved one to ADAO’s master list, either in memory or in honor of someone you love. This project is conducted in conjunction with the Association of Cancer Online Resources (ACOR). View the list, or email acor@AsbestosDiseaseAwareness.org to add a name to the list.

Linda Reinstein, ADAO’s co-founder, says, “Since founding ADAO in March 2004, thanks to the efforts for our all-volunteer organization, we have grown beyond our initial expectations. Our passion and commitment to preventing asbestos exposure, offering support and resources and remaining unwaveringly committed to banning asbestos and funding research for a cure has gained momentum and recognition on The Hill. You have been heard! Thank you for your continued support of ADAO, ‘the voice of the victims,’ as together, change is possible.”

Please join the mesothelioma community on Monday and light your candle in memory of those whose battle has sadly ended, and make plans to celebrate the life of a meso warrior on January 4.

The Asbestos Disease Awareness Organization has announced registration is now open for its Sixth Annual International Asbestos Awareness Conference. The conference is scheduled for April 9-11, 2010 in Chicago, Ill. This annual event brings together renowned doctors, scientists, researchers and asbestos victims and their families in a united forum for asbestos awareness, education and collaboration. Each year the event coincides with national Asbestos Awareness Day, April 1.

In addition to providing educational information, advocacy support, a special remembrance ceremony and networking opportunities, each year the conference honors individuals or organizations that have demonstrated outstanding work and dedication to asbestos awareness related activities. ADAO has announced this year’s honorees:

• The Honorable Richard Durbin, United States Senator – Tribute of Hope Award
• Dr. Hedy Kindler – Selikoff Lifetime Achievement Award
• Center for Asbestos Related Disease (CARD), Libby, Montana – Tribute of Unity Award
• Fernanda Giannasi – Tribute of Inspiration Award
• June Breit (posthumous) – The Alan Reinstein Memorial Award

At the conference, the ADAO also will announce the recipient of the Warren Zevon “Keep Me in Your Heart” Memorial Tribute.

“I’ve received countless requests for my father’s song, ‘Keep Me in Your Heart,’ to be used at memorials for asbestos victims,” said ADAO Spokesperson Jordan Zevon. Jordan is the son of Warren Zevon, acclaimed singer and songwriter, who died of mesothelioma in 2003. “You can imagine how proud it makes me to know that my father’s Grammy winning song has touched so many families, but it is bittersweet because of the nature of those requests. In his honor, I will continue to work with ADAO to ban asbestos to spare future generations from the same fate.”

“As we get closer to a full asbestos ban, we are encouraged, yet simultaneously reminded that the reverberations of asbestos exposure can last decades,” said Linda Reinstein, Co-Founder and Executive Director of ADAO. “Our annual conferences drive home the importance of the need for increased awareness, education and research.”

Additional conference details are available on the ADAO web site, and online registration is available at http://www.adao.eventbrite.com.

The International Asbestos Awareness Conference is made possible with the support and collaborative efforts of the Barbara Ann Karmanos Cancer Institute and the International Ban Asbestos Secretariat (IBAS).

There are tons of new educational, outreach and awareness materials now available from the Mesothelioma Applied Research Foundation. If you do not already subscribe, the latest issue of the Foundation’s “Breath of Hope” newsletter is available. The latest issue provides a recap of activities during the International Symposium on Malignant Mesothelioma, which was held in Washington, D.C., in June. The newsletter includes photos from the event and a wealth of information about research and advocacy, as well as personal stories from mesothelioma patients and their families and caregivers.

This issue is available to download online. If you are having trouble downloading the newsletter, or just want an original hard copy, please let me know. I have some extra copies of the newsletter graciously provided to me by the Meso Foundation that I would be happy to send to you. You can also subscribe by visiting the Meso Foundation online at www.curemeso.org. There also is an archive of past newsletters on the site.

Another exciting resource available at the Meso Foundation web site is a video library of presentations from the Symposium. There were so many great speakers, and this is a truly valuable resource for excellent educational information. The video library also provides access to the slides used by conference speakers. There really is a fantastic amount of information here on topics ranging from Advocacy & Advancing the Mission, to Integrative Medicine, Nutrition, Cancer and the Immune System, Peritoneal Mesothelioma, Pleural Mesothelioma, Clinical Trials and much more.

While on the Meso Foundation web site, please join their online Mesothelioma Community, which will allow you to exchange information with others through a Bulletin Board, as well as read a number of blogs touching on a wide variety of topics. You can also subscribe to an e-newsletter that will keep you informed about all the great work the Meso Foundation is accomplishing in its mission to find a cure for mesothelioma.

If you have any questions or need assistance, you may call the Meso Foundation at (805) 456-7272 or call them toll-free at 877-END-MESO.

In a news release yesterday the Asbestos Disease Awareness Organization (ADAO) applauded a recent decision by the American Public Health Association (APHA) to strengthen its policy against asbestos. The APHA has adopted a resolution calling on Congress to ban the manufacture, sale, export or import of asbestos containing products. ADAO co-founder Linda Reinstein says she hopes this is one more step forward in finally securing a total ban of asbestos in the United States.

According to its web site, the ADPH is the largest, oldest and most diverse organization of public health professionals in the world, and has been working to improve public health since 1872. The association “aims to protect all Americans and their communities from preventable, serious health threats and strives to assure community-based health promotion and disease prevention activities and preventive health services are universally accessible in the United States.”

“We can’t let history repeat itself,” Reinstein said in the news release. “APHA renews our optimism that a federal asbestos ban is imminent.”

The APHA resolution for the elimination of asbestos includes a brief history of the known links between asbestos and adverse health effects, including malignant respiratory disease, including asbestosis, lung and other cancers, specifically mesothelioma. It also states that the organization opposes legislation that would limit the right of victims of asbestos disease to recover damages from asbestos manufacturers, and supports the Bruce Vento Ban Asbestos and Prevent Mesothelioma Act of 2008.

In order to strengthen its stance on asbestos, the resolution not only calls for the complete ban on the manufacture, sale, export or import of asbestos-containing products, but also recommends the U.S. Congress should direct research funding to identify public health hazards resulting from asbestos mining or excavation of minerals that occur naturally with asbestos. It urges the U.S. Surgeon General to warn and educate people annually about the public health issues related to asbestos exposure (building on a similar warning issued in April this year) and to “disseminate widely and annually its asbestos warning to all federal and state health, consumer, labor and environmental protection agencies.”

The resolution also recommends that the National Institute for Occupational Safety and Health (NIOSH) and the Occupational Safety and Health Administration (OSHA) issue an annual statement to alert workers in high-risk occupations to the dangers and adverse health risks associated with asbestos.

Other recommendations address testing existing structures for the presence of asbestos, and asking the government to take a harder stance against asbestos manufacturing, sale and exportation by other nations, as well as by corporations, calling for a global ban on asbestos.

The ADAO news release quotes Celeste Monforton, DrPH, MPH, who is Chair of the ADPH Occupational Health and Safety section, as saying, “With this new policy, the ADPH is joining the World Federation of Public Health Associations and other international organizations calling for a global ban on asbestos mining and manufacturing, and the dangerous practice of exporting asbestos containing products.”

Read the ADAO News Release.

Read the full APHA Resolution.

A story on the Cold Truth web site published Oct. 21 reported on a recent meeting of the Manhattan Beach, Calif., City Council, during which it passed a resolution to ask the State of California to find a new “official state rock.” The state’s current stone is serpentine, which usually contains asbestos. Asbestos is a known carcinogen that causes the deadly cancer mesothelioma, which affects the lining of the lungs, stomach and/or heart, as well as other deadly diseases including asbestosis, a severe scarring of the lungs.

Cold Truth is an original investigative journalism reporting site created by Pulitzer Prize winning reporter Andrew Schneider, who broke the story of the asbestos poisoning of Libby, Montana, among others. According to his report, serpentine was chosen as the state rock of California in 1965, “in order to promote the then-lucrative asbestos mining industry.”

The proposal to ask California’s government to change the official state rock was presented and supported by the Asbestos Disease Awareness Organization (ADAO), which is headquartered in California. The organization has dubbed the effort the “Drop the Rock” Campaign, and urges statewide action while building awareness about cancer-causing asbestos.

According to a news release from ADAO dated Oct. 21, Resolution 6223 is “Urging the State Legislature to repeal the designation of serpentine, the host of asbestos, as the official state rock, in support of world eradication of asbestos for public health as urged by the Asbestos Disease Awareness Organization.”

The resolution from Manhattan Beach represents the first official request to the California legislature to remove the rock. ADAO notes that Chrysotile asbestos, which is often found in serpentine, causes cancers and respiratory diseases such as mesothelioma, asbestosis and lung cancer.

“California has the dubious distinction of being the state with the highest recorded number of asbestos-related deaths and the death toll will continue until the United States Congress passes legislation banning asbestos,” said ADAO Executive Director and Co-Founder Linda Reinstein in the news release. “We have a strategic plan in place and look forward to working with asbestos victims and their families, the John McNamara Foundation, the Pacific Heart, Lung & Blood Institute, and political leaders as we move throughout California to repeal serpentine as the state rock.”

The ADAO news release quotes Manhattan Beach Mayor Portia Cohen as saying, “It is unthinkable to have Serpentine as the State Rock of California when more than 7,000 people in our state alone have died from asbestos since 2007.”

Read Resolution 6223.