Not three months ago, on Dec. 31, it was announced that football and television star Merlin Olsen had been diagnosed with mesothelioma. Today I learned that he has passed away, a victim of this horrible disease that lies in wait to kill. He was only 69 years old.

Olsen was a star defensive lineman for the Los Angeles Rams football team, who went on to a television acting career. He played Jonathan Garvey on the series Little House on the Prairie and was the title character of Father Murphy. He also appeared on Fathers and Sons and Aaron’s Way, and filled the role of sportscaster at both CBS and NBC.

Online celebrity news magazine TMZ broke the news in December that Olsen and his family had filed a lawsuit against several companies, including NBC Studios, NBC Universal and 20th Century Fox Film Corporation, claiming they were responsible for exposing him to asbestos, which causes mesothelioma. Also named in the suit are Sherwin Williams and Lennox Industries, whose products Olsen says he was exposed to during jobs in his youth.

Read his obituary in the Los Angeles Times.

On December 8, 2009, his alma mater, Utah State University, where he was selected twice as an NCAA All-American, among other honors, announced it would name its football field after him – Merlin Olsen Field. How truly sad that he will never see a team take the field that now bears his name. Watch the tribute video created by the university at the announcement:

What a sad loss of a man who truly seemed to care genuinely for others, for his family and his community. He will be genuinely missed.

I am super-late in posting this, but I wanted to share some photos from Heather Von St. James and family’s annual Lung Leavin’ Day celebration. Those of you who have followed Heather’s story here on myMeso know that this is the day that commemorates Heather’s decision to undergo an extrapleural pneumonectomy to remove her mesothelioma tumor.

Prior to the surgery, which removed Heather’s lung and part of her diaphragm, along with the cancer, her family gathered for the first Lung Leavin’ Day. They wrote their fears on plates and smashed them in the fire – a symbolic conquering! Today, Heather celebrates four years cancer free! The 4th Annual Lung Leavin’ Day Celebration was held Feb. 6, and Heather reports that more than 60 people joined her for the festivities. What a wonderful blessing to see Heather healthy and happy, surrounded by friends and loved ones!

Those of us who could not be there in person were there in spirit. Even our good friend Debbie Brewer celebrated “across the pond” in the U.K. I substituted a paper plate and the fireplace for china and a bonfire, but the sentiment was the same nonetheless. We love you Heather, and look forward to many more Lung Leavin’ Days in the future!

Pictured below is a photo of the fire, surrounded by broken plate shards.

Heather lit a candle in tribute to those who have lost their battle with mesothelioma, as well as in honor of those who are still fighting the battle. The names of the meso warriors were posted.

On Dec. 31, the online celebrity news source, TMZ, revealed that football and television star Merlin Olsen has filed a lawsuit against a number of companies, claiming they are responsible for exposing him to asbestos, resulting in his recent diagnosis of malignant mesothelioma. Companies named in the suit are Sherwin Williams and Lennox Industries, whose products Olsen says he was exposed to during jobs in his youth, but also NBC Studios, NBC Universal, and 20th Century Fox Film Corporation. It is unclear from the lawsuit how the television and movie companies contributed to Olsen’s asbestos exposure.

Olsen was a professional football player for the Los Angeles Rams team, and later had a successful career as a sportscaster and actor, most notably on shows “Little House on the Prairie” and “Father Murphy.”

According to the lawsuit, filed in Los Angeles County Superior Court, the defendants “were engaged in the business of manufacturing, fabricating, designing, assembling, distributing, leasing, buying, selling, inspecting, servicing, installing, repairing, marketing, warranting and advertising a certain substance the generic name of which is asbestos.”

News reports say Olsen, with wife Susan by his side, is fighting his mesothelioma and currently undergoing chemotherapy.

Read the complaint.

A December report by the New York Times revealed that Sen. Max Baucus (D-Montana) has inserted language into the government’s proposed health care legislation that would provide coverage specifically for people exposed to asbestos in Libby, Montana. According to the report, language in the bill would expand Medicare coverage to vicitims of “environmental health hazards.”

According to the Times, the language is even more precise, calling for coverage for “individuals exposed to environmental health hazards recognized as a public health emergency in a declaration issued by the fedearl government on June 17.” This declaration and date, of course, coincides with the U.S. Environmental Protection Agency’s designation of Libby as a Public Health Emergency area.

The Times quotes Baucus as saying the language is not only intended for the people of Libby, but for anyone in the future whose town is affected by a similar tragedy that affects the health and well-being of its people. He said the legislation would provide a safety net to “help people when they need it most.”

Both the U.S. House of Representatives and the U.S. Senate passed their versions of the health care reform bill last year. It is now up to the 111th Congress as a whole to reconcile the two bills so that they may be presented to President Obama for his signature.

Congressional leaders say they hope to accomplish this by the end of January.

Princeton University announced Edward Taylor, its A. Barton Hepburn Professor of Organic Chemistry Emeritus, will be inducted into the American Chemical Society (ACS) Division of Medicinal Chemistry Hall of Fame in 2010. Additionally, Taylor has been inducted into the New Jersey Inventors Hall of Fame and was selected to receive the 2010 Alfred Burger Award in Medicinal Chemistry from the ACS. Taylor was instrumental in the development of Alimta, a drug manufactured by Eli Lilly and Co. and approved for the treatment of malignant pleural mesothelioma by the U.S. Food & Drug Administration in 2004.

Taylor was recently honored for his accomplishments at the Celebrate Princeton Invention reception, held Dec. 18. He developed Alimta in partnership with scientists at Eli Lilly and Co.  after spending more than 40 years on the Princeton faculty. However, he began research that would lead to the mesothelioma drug’s development while a graduate student at Cornell University.

According to a Princeton news release, Taylor became fascinated by reports of a compound obtained from spinach and liver that had a unique chemical structure with a nucleus previously only observed in the pigments of butterfly wings. The compound from liver, now known as folic acid, he found was essential for the synthesis of DNA and RNA, and for the growth of cells.  Taylor observed that changes to the structure of folic acid could transform it from a growth-promoting to a growth-inhibiting compound, and dedicated his career to determine how it could be used to kill cancer cells.

Since its approval by the FDA in 2004, the drug has received three additional FDA approvals, most recently in July when it became the first chemotherapy approved for use as a maintenance therapy for patients with locally advanced or metastatic nonsquamous non-small cell lung cancer. Alimta has been successful in improving the quality of life and extending the lifespan of millions of cancer patients in nearly 100 countries around the world.

Taylor has previously been honored with the ACS Heroes of Chemistry Award, the International Society of Heterocyclic Chemistry Senior Award in Heterocyclic Chemistry, and the Research and Development Council of New Jersey’s Thomas Alva Edison Patent Award for Invention.

It has been a difficult year for many in the mesothelioma family. Many have lost loved ones, or are facing a scary diagnosis. But 2009 also held a lot of good news. To illustrate that, I’d like to share a news article about our great friend in the UK, Debbie Brewer. Just after Christmas, Debbie was featured on the front page of The Herald, a newspaper that covers the Plymouth area. The paper describes Plymouth as a “hotspot for asbestos-related deaths.”

In the feature, Debbie talks about how she moved from what was presented to her as a death sentence to her new outlook of happiness, hope and survival. Debbie was diagnosed in November 2006, at which time she thought she might be seeing her last Christmas. Doctors estimated she had only six to nine months to live.

As most of you know, Debbie refused to accept the prognosis that she had only months to live, instead actively seeking alternative medical treatments that might take a fresh look at her cancer and provide her with new options. Primarily, she found Prof. Thomas Vogl at the University Clinic in Frankfurt, Germany, who administers a therapy called chemoembolization. In this therapy, chemotherapy drugs are introduced directly to the tumor area through a catheter into the lung.

Because the treatment is still in clinical trial stages, Debbie had to travel to Germany for each treatment, not available in the UK, and paid for travel expenses and medical care from her own pocket. However, results were amazing, and Debbie’s tumor shrunk by more than 80 percent, putting her in full remission.

Despite a recent setback, when a September check-up showed cancer in her lymph node had increased in size (the tumor in her lung remains stable), she is optimistic. She lobbies energetically for mesothelioma and asbestos awareness, and also to bring chemoembolization to the UK so that more people might try this new therapy that has shown so much success in her case.

The paper quotes Debbie as saying, “Christmas is the time of year I celebrate being here. ”

We love you, Debbie, and we are SO glad to celebrate another Christmas with you, and we look forward to spending 2010 with you!

Read the full article.

There is an ongoing debate in the United Kingdom about whether the country’s Labour department is responsible for compensating workers suffering from pleural plaques. In 2007, the Law Lords ruled that pleural plaques did not qualify for worker’s compensation. Pleural plaques are areas of fibrosis, or scar tissue caused by exposure to asbestos. They are usually found on the inside of the diaphragm.

A champion for the rights of workers who have developed pleural plaques as a result of exposure to asbestos in the workplace is Jarrow MP Stephen Hepburn. In a meeting at the House of Commons on Nov. 27, he argued the issue of pleural plaques is “immensely important” to workers and pensioners, and insisted it is the duty of members of both sides of the House to overturn the “disgraceful and unjust decision by the Law Lords to bar this terrible illness from classification as a designated illness for compensation purposes,” according to a report in The Chronicle.

Hepburn also told the Commons that pleural plaques sufferers are 1,000 times more likely to develop a more serious form of asbestos-related cancer. Mesothelioma is a deadly form of cancer that affects the lining of the chest cavity and lungs (pleural) or the lining of the stomach (peritoneal). It may also rarely affect the lining of the heart (pericardial). There is no known cure for mesothelioma.

During the heated debate, The Daily Mirror reports that statistics were revealed that show mesothelioma rates in the UK have nearly doubled in 10 years. According to the news source, hospitals treated 7,349 cases of mesothelioma in the past year, compared to 3,773 cases during the timeframe of 1998-99. The Mirror calls mesothelioma an “asbestos timebomb,” citing the disease’s long latency period.

The Mirror quotes Hepburn as saying, “We’re seeing the legacy of workers exposed to asbestos in the 1960s.”

Everyone following Debbie Brewer’s story on this site knows that last December it was determined she was in remission from mesothelioma – a miracle! – following successful chemoembolization treatment in Germany. Then, in September, she received a worrying report that appeared to show growth in a lymph node in her chest, which showed up on a CT scan. Subsequent tests revealed that there was growth, which would require treatment.

This week, Debbie started radiotherapy on the lymph node. She tells me that the radiotherapy treatment is a 3-week course, Monday to Friday, and depending on how the lymph node responds could go to 5 or 6 weeks.

Doctors also did a biopsy on her right groin area, which was the site where Dr. Vogl introduced the chemoembolization procedure. There is some question about whether the mesothelioma could have seeded at the induction site. Debbie says Dr. Vogl – who is pioneering the chemoembolization treatment at the University in Frankfurt – is hopeful and optimistic that this is not the case. However, the treatment is still experimental, so it is hard to know what to expect, she says. The chemoembolization treatment was done six times, each time in the same area.

The biopsy was done on Tuesday, with doctors taking two samples. Debbie is now waiting on the results.

She is in good spirits and keeping a positive outlook, so I’m sure she’d appreciate the continued well wishes and encouragment. She promises to let us know when she receives the results. You can also read more about Debbie’s story, and the other goings-on in her life, at her own blog, Mesothelioma & Me.

In the world of mesothelioma, we are so often surrounded by bad news, it is especially exciting to hear something good. Today I can share some of the BEST news. Those of you familiar with this site are familiar with Heather Von St. James, whose story we featured on this site. After being diagnosed with mesothelioma, Heather chose to have an extrapleural pneumonectomy, in which the affected lung, as well as part of her diaphragm and a rib were removed. Heather reports that her latest scans in Boston have come out clean and clear!

She was so excited, she posted the above photo on her Facebook page, and also allowed us to share it with you here, to let all her friends and fans see how well she is. Also, this scan provides a glimpse of what a body looks like after the extrapleural pneumonectomy, with only one lung. This is from her CT scan, done Nov. 3, 2009.

In the photo below, you can tell from her face and the enthusiastic “thumbs up” that she’s relieved and happy with these latest results.

We are ecstatic to see that Heather continues to be cancer free, healthy and strong! We love you, Heather, and pray for your continued good health!

“For every life lost to asbestos, a shattered family is left behind.” This is the motto and the message of the Asbestos Disease Awareness Organization (ADAO) co-founder Linda Reinstein. Linda, who now serves as ADAO’s executive director, became an activist on behalf of the victims of asbestos disease in 2003, when her husband Alan was diagnosed with mesothelioma. He passed away in May 2006.

The Asbestos Disease Awareness Organization, which Linda established in 2004 along with co-founder Doug Larkin,  is a non-profit organization dedicated to serving as the voice for all asbestos victims. Its mission includes education, outreach, networking for asbestos victims, and especially working to accomplish a complete ban of asbestos in the United States. ADAO has gotten a U.S. Senate resolution to officially declare April 1 as Asbestos Awareness Day, and hosts an annual Asbestos Awareness Day Conference to increase awareness and help prevent future exposure.

This year, the Acting Surgeon General Steven K. Galson supported National Asbestos Awareness Week, the first week of April, and issued a statement about the deadly health hazard posed by asbestos.

Since co-founding ADAO, Linda has globally united countless individuals and families who have been affected by asbestos related diseases, including mesothelioma and asbestosis. She also has worked to produce awareness materials including a slide show called “Asbestos Kills,” and other educational materials including an internationally distributed online book, “Reflections,” which features articles from renowned global experts.

Last week, the ADAO launched a new resource center page on its web site, and issued a call to action for those of us in the mesothelioma community to push for a complete ban on asbestos in the United States by contacting our Congressional representatives.

There is an easy way to do it – just visit www.banasbestos.us and click on the link that says “Write Your Congressman,” which is on the home page. This will take you to a form you can fill out, and it will automatically send the message to your Congressional delegates. Remember, YOU shoud be THEIR voice on Capitol Hill!

“I need them to feel our pain,” Reinstein said. “Asbestos victims – patients, families, caregivers -  are turning their anger to action, across the nation, working for the difference we can make, together.”

Pictured above, Linda Reinstein with her and Alan’s daughter Emily. The flag is in recognition of Alan’s military service to his country.