Posts Tagged ‘Asbestos Disease Awareness Organization’

Light a candle for unity, hope and remembrance

7 Apr 2009 by Wendi Lewis under Events, News, Organizations

candle in the dark 100x100 Light a candle for unity, hope and remembranceAs Awareness Week - April 1-7, 2009 - draws to a close, the Disease Awareness Organization (ADAO) is encouraging the and awareness community to recognize the victims of asbesots disease around the world.

Tonight, on Tuesday, April 7, everyone is encouraged to join in a candle-lighting at 6 p.m. PST (8 p.m. CST). The event will signify Unity, Hope and Remembrance of those we love, and will be a time to honor those who have been lost to disease.

Many people are surprised to learn that is still not completed banned in the United States. It is allowable at contents of 1 percent or less, despite studies that show that there is no safe level of asbestos exposure. The only known cause of , a deadly cancer most often affecting the lining of the lungs, is exposure to .

Tonight, join us in remembering those who are struggling with and other disease, and those who have lost their fight. One of the greatest tragedies of disease is that it doesn’t have to happen. How many more have to suffer before this deadly substance is finally eradicated?


Asbestos Awareness Week in Montgomery, AL

1 Apr 2009 by Wendi Lewis under News

Asbestos Awareness WeekMayor Todd Strange today signed a proclamation declaring April 1-7 as Week in Montgomery, Alabama. This proclamation supports National Week, as established by Senate Resolution.

It is the purpose of Week to raise public about the prevalence of and -related diseases and the dangers of asbestos exposure. can still be found in many products in the United States, which consumes nearly 7,000 metric tons of each year. also is present in insulation produced prior to the 1950s and building products used well into the late 1970s, all of which can still be found in homes and public buildings.

Microscopic fibers can be inhaled, where they imbed themselves in the body and cause diseases including asbestosis, a chronic scarring of the lungs, and mesothelioma, a deadly cancer.

Day, and later Week, was established nationally by the Asbestos Disease Awareness Organization (), which was founded by victims and their families in 2004. works to give victims and concerned citizens a voice as they fight for a total and complete ban on in the United States.


Senate establishes fifth annual National Asbestos Awareness Week

3 Mar 2009 by Wendi Lewis under Events, News, Organizations

The Asbestos Disease Awareness Organization announced that the United States Senate has officially introduced a resolution declaring the first week of April as National Asbestos Awareness Week. This is the fifth year the event has been officially recognized by Senate Resolution. S.RES.57 also urges the Surgeon General to warn and educate Americans about the severe hazards of asbestos exposure.

The resolution was introduced by Senator Max Baucus (D-MT). Co-sponsors and key supporters are Sen. Richard Durbin (D-IL), Sen. Dianne Feinstein (D-CA), Sen. Johnny Isakson (R-GA), Sen. Edward Kennedy (D-MA), Sen. Patrick Leahy (D-VT), Sen. Patty Murray (D-WA), Sen. Harry Reid (D-NV), and Sen. John Tester (D-MT).

In a news release, Linda Reinstein, Executive Director and co-founder of said, “Since 2005, has worked with the Senate to raise awareness through the passage of asbestos awareness resolutions. We continue to honor individuals and their families who have suffered from diseases caused by asbestos exposure through our efforts to increase awareness and prevention. will continue to work with Congress to educate Americans until we finally ban the deadly fibers once and for all.”

In recognition of Asbestos Awareness Day, the will hold its fifth annual Asbestos Awareness Conference March 27-29 in Manhattan Beach, Calif.

Read SR 57.


Asbestos Awareness Conference set for March 28

5 Feb 2009 by Wendi Lewis under Events, News, Organizations

The Asbestos Disease Awareness Organization (ADAO) has announced its Fifth Annual International Asbestos Awareness Conference is set for March 28, 2009, in Manhattan Beach, Calif. The purpose of the event is to educate the public about the dangers of asbestos, ban its use and encourage research efforts to improve treatment options for asbestos diseases like .

The conference will feature prominent physicians, scientists, safety and health directors, as well as survivors, who will present current information about the status of asbestos in the U.S. and worldwide. Discussion will include facts on exposure, asbestos-related diseases and how to prevent them, and where to turn for help.

In addition to the main event on Saturday, there will be an evening reception on Friday, March 27, featuring musician Jordan Zevon, whose father, legendary singer-songwriter Warren Zevon, died of in 2003; and a Unity and Hope Remembrance Brunch on Sunday, March 29.

Five individuals will be honored for their outstanding work in raising awareness about asbestos exposure: U.S. Senator Barbara Boxer for her work to ban asbestos in the U.S.;  Margaret Seminario, AFL/CIO, for her efforts to unite, educate and empower asbestos victims and workers; Dr. Stephen Levin, MD, for his research into the social and medical impact of asbestos; and Pralhad Malvadkar and Raghunath Manwar for their work with victims of asbestos exposure in India and worldwide.

The conference is presented by ADAO, the Barbara Ann and the International Ban Asbestos Secretariat.

For more information or registration, visit ADAO online.


Remembering Warren Zevon, 1947-2003

5 Sep 2008 by Wendi Lewis under People

Sunday, Sept. 7, is the fifth anniversary of Warren Zevon’s . The Grammy award-winning composer and musican, who penned such popular tunes as “Werewolves of London,” passed away in 2003 from , at age 56.

The following videos are from Zevon’s last appearance on the David Letterman show in October 2002, where he was the only guest for the program, a tribute to his life and work. During the interview with Letterman, Zevon quipped that facing had taught him to “enjoy every sandwich,” a reminder to savor each moment of life.

These videos provide a wonderful portrait of this talented musician. He is greatly missed.

Warren Zevon’s son, Jordan, also a talented musician, is an active advocate for and asbestos disease awareness, and spokesperson for the Asbestos Disease Awareness Organization.


Asbestos in CSI toy sparks lawsuits

16 Apr 2008 by Wendi Lewis under Legal, Organizations

Public Justice recently filed suit in federal and California state courts against CBS Broadcasting, Inc., Planet Toys, Inc., and several retail manufacturers in response to their production and marketing of CSI toy kits containing asbestos. Asbestos has been linked to mesothelioma, a deadly lung cancer, as well as other cancers, asbestosis and pulmonary fibrosis.

CBS licenses the toy, which is based on its popular CSI: Crime Scene Investigation ™ television program. Planet Toys is the manufacturer.

According to a Public Justice press release, the federal complaint, filed in U.S. District Court in Los Angeles, alleges that CBS and Planet Toys were negligent in their quality control measures and that they promoted the CSI toys although they contained a hazardous and potentially lethal carcinogen.

In November 2007, the Asbestos Disease Awareness Organization (ADAO) released results of a study of a number of products, including the CSI: Crime Scene Investigation ™ Fingerprint Examination Kit. It was found that the CSI toy’s fingerprinting powder contained asbestos. The fingerprinting powder containing asbestos also can be found in related CSI toy kits, the CSI: Crime Scene Investigation ™ Field Kit and the CSI: Crime Scene Investigation ™ Forensic Lab Kit.

The story was covered in the news media, including CNN, in December 2007. On Feb. 21 CNN did a follow-up report and noted that the Planet Toys had not yet issued a recall.

Public Justice reports that in a meeting including representatives from ADAO, CBS and Planet toys in December 2007, CBS and Planet Toys agreed to remove some of the toys from store shelves, and to work with Public Justice to further test the toys. However, Public Justice reports that months later, there has been no joint testing, Planet Toys continues to deny the products contain asbestos, and there has been no recall.

The Public Justice press release quotes Linda Reinstein, executive director of ADAO, who says, “Our pleas for the companies to do the right thing have fallen on deaf ears. It is unacceptable and unnecessary to have asbestos in toys, and especially in powder form, its most dangerous state. Most Americans falsely believe asbestos has been banned, but our recent product testing results prove asbestos remains a threat to public health.”

The federal complaint is a class action suit that asks the defendants to “provide refunds to consumers, pay for asbestos testing of toys that have been opened, and pay for appropriate medical treatment for consumers who have been exposed to asbestos,” according to the release. The state lawsuit “seeks civil penalties for violations of the law, in addition to injunctive relief.

Read the full text of the Public Justice press release here. This site also contains links to the federal and California state complaints.

Public Justice is a membership-supported law firm with more than 3,500 members, comprised of trial lawyers, other attorneys, and public interest advocates worldwide.

ADAO is a nonprofit organization dedicated to the mission of “asbestos awareness, education, advocacy, prevention, support and a cure.”


Karmanos tackles looming asbestos epidemic

2 Apr 2008 by Wendi Lewis under Events, Organizations, People

Karmanos Cancer CenterAs I mentioned earlier this week, I spent the past weekend in Detroit, , at the 4th Annual Asbestos Awareness Day Conference, presented by the Asbestos Disease Awareness Organization (ADAO).

The conference was held at the Barbara Ann Karmanos Cancer Institute, which is the location of the National Center for Vermiculite and Asbestos-Related Cancers, co-directed by Dr. Michael Harbut and Dr. John Ruckdeschel, both of whom spoke at the ADAO conference.

While it might seem obvious, Dr. Harbut said, a key to diagnosing and treating asbestos disease is an emphasis on a medical approach.

Dr. Harbut explained that the Karmanos program “approaches asbestos disease from a purely medical standpoint, which includes taking into account any risk factors, employing state-of-the-art scanning equipment and a multidisciplinary, research-driven approach to early detection and treatment. This includes consideration of non-mailgnant or sub-clinical asbestos disease.

“Diseases that are ‘not hurting you yet,’” he said.

Focus areas at the National Center for Vermiculite and Asbestos-Related Cancers include the establishment of a schema for high resolution CT (HRCT) classification, measurement of pleural plaque volume, examination of psycho-social aspects of asbestos disease, testing new treatments including osteopontin and SMRP, and compiling a comprehensive database of disease, diagnosis and treatment.

The Center encourages anyone at risk from asbestos exposure to seek testing for early detection.

Dr. Ruckdeschel said barriers to successful asbestos disease treatment include a sense of nihilism in the medical community, the idea of giving up on the patient when mesothelioma is diagnosed due to its traditionally high mortality rate. There is a sense of providing only “quick fix” supportive care, he said.

Other challenges include a lack of treatment centers with a documented track record, lack of large standardized treatment trials, and a paucity of research investment, Dr. Ruckdeschel said.

The Center predicts an epidemic of vermiculite and asbestos-related cancers in the near future, as the latency period of asbestos disease exposure is reached, and as asbestos exposure spreads around the world, particularly in third-world countries.

“One life lost to asbestos disease is tragic. Hundreds of thousands of lives lost is unconscionable,” Dr. Ruckdeschel said.

For more information, visit the Karmanos Cancer Institute online or call 1-800-KARMANOS.


Today is Asbestos Awareness Day

1 Apr 2008 by Wendi Lewis under Events, Organizations

Today, April 1, is Asbestos Awareness Day. On a national level, the Awareness Organization () is working in Washington, D.C., and around the world, to increase awareness and secure a true ban of all asbestos in the United States. Currently, asbestos is allowable in products at 1% or less by weight.

secured a senate resolution declaring April 1 as Asbestos Awareness Day, and April 1-7 as Abestos Awareness Week. You can visit the ADAO online.

Today also is Asbestos Awareness Day in Montgomery, Alabama, as designated by mayoral proclamation, signed by Montgomery Mayor Bobby Bright. The local effort strives to bring the message of asbestos awareness and education to the community and to bring attention to the national effort to ban asbestos.

Asbestos exposure can lead to asbestos-related disease including asbestosis, lung cancer and malignant mesothelioma. Many symptoms of mesothelioma and other asbestos diseases do not appear for 20 or more years, making it difficult to diagnose early. For this reason, the cancer is often diagnosed in late stages, making it too often deadly.

In the U.S. current statistics show 2,000-3,000 people are diagnosed with malignant pleural mesothelioma each year, and 10,000 Americans or more die each year from all asbestos-related disease.


Conference educates about asbestos

31 Mar 2008 by Wendi Lewis under Events, News

Over the weekend I traveled to Detroit, Michigan, to attend the fourth annual Asbestos Day Conference, presented by the Organization. The conference included a full day of educational and informative presentations on Saturday, as well as a remembrance service on Sunday.

Following is a story that appeared in the Detroit Free Press about the remembrance service, and the mission of asbestos . I will post some stories and images from the conference this week, but I wanted to share this excellent report.

By Amber Hunt, Free Press Staff Writer

For Andrew Manuel, it began with back pain.

But the seemingly benign symptom turned out to be something far more sinister, and within two years, the married father of three shed 65 pounds, underwent surgery to have a lung removed and endured chemotherapy and radiation to no avail.

At 42, he was dead. The killer: mesothelioma, a cancer linked to asbestos.

“When I heard the diagnosis, I said, ‘Meso-what?’ ” said Manuel’s wife, Latanyta Manuel, 45, on Sunday. “All I heard was ‘lung cancer,’ and I said, ‘No, that’s not possible.’ My husband never smoked or drank, but they said this cancer is about asbestos.”

On Sunday, a group of people affected by the deadly disease, which they refer to as “” for simplicity’s sake, gathered at the Marriott in downtown Detroit’s Renaissance Center for a remembrance brunch.

The event was sponsored by California-based Organization and the Karmanos Cancer Institute in Michigan.

Some, such as Manuel, had lost loved ones. Others have been diagnosed with the deadly disease themselves.

They gather annually, they said, to support each other and to spread the word about asbestos-related diseases, including lung cancer and asbestosis.

Asbestos is a fiber that for decades was routinely used for fireproofing and insulation.

While the U.S. government has limited its use, asbestos still can be found in many products, including some stuccos, vinyl flooring and even theater curtains, according to the Asbestos Resource Center.

“Asbestos is still being imported. It’s still being put in products,” said Michelle Zigielbaum, whose husband, Paul, has been diagnosed with peritoneal mesothelioma.

By the time he was diagnosed, his stomach was so full of fluid and tumors that “I looked like a pregnant woman,” Paul Zigielbaum said.

The Organization recently conducted a study that tested 250 products off store shelves for asbestos content. A first lab found that 18 of the products contained asbestos.

A second lab confirmed that eight of the products had asbestos, while a third confirmed that five products — including a child’s toy — contained asbestos.

Those gathered Sunday said they and their loved ones got sick in different ways.

Andrew Manuel’s father worked in a pipeline, bringing asbestos back into the home. Paul Zigielbaum said he believes he was exposed secondhand, too, but said he also believes that contact with everyday products contributed.

All blamed aggressive asbestos lobbyists as the reason the United States hasn’t banned the substance altogether.

“It’s disturbing to see how companies and politicians try to cover it up,” said Dwayne Manuel, Andrew Manuel’s 26-year-old son. “This is a preventable disease.”

Latanyta Manuel said she just wants to honor her husband’s wishes and spread about the disease.

“Once it erupts, it just kind of takes over,” she said. “People need to know.”

Contact AMBER HUNT at 586-826-7267 or alhunt@freepress.com.


Mayor declares Asbestos Awareness Day

28 Mar 2008 by Wendi Lewis under Events, News, People

Mayor Bright and Wendi LewisMontgomery Mayor Bobby Bright signed a proclamation today, declaring April 1 as in Montgomery, Ala., in a ceremony at his office . This proclamation goes hand-in-hand with a senate resolution declaring April 1 National , and April 1-7 Asbestos Awareness Week. is a project of the Asbestos Disease Awareness Organization. (not affiliated with MyMeso)

It is hoped that the local proclamation will bring attention to national efforts to completely ban asbestos in the U.S. and raise awareness about the dangers that still exist.

In Montgomery, strives to educate the public about the ongoing dangers of asbestos exposure, which can lead to asbestos-related disease such as , lung cancer, and malignant mesothelioma.

Pictured is Wendi Lewis, Conversation Architect for Beasley Allen, receiving the proclamation from Mayor Bright.