Posts Tagged ‘Lung Cancer Alliance’

Lung cancer awareness takes big step forward

18 Aug 2009 by Wendi Lewis under Legal, News, Organizations

lca logo Lung cancer awareness takes big step forwardThis week the Alliance announced a big step forward in raising awareness and establishing real support for research. The agency announced Senator Ben Nelson (D-NE) has agreed to cosponsor the Reduction Act of 2009, S.332.

This important legislation authorizes a five-year program to reduce the rate of , which continues to be the number one cancer killer.

Even though mesothelioma is not technically classified as “” because it affects the lining of the chest and lungs, and can also affect the lining of the abdomen and the heart, I am excited to see real progress being made in this area. Funding for research and treatment of can only benefit victims of mesothelioma – pleural in particular, affecting the lungs – as well as other -related diseases that affect the lungs, such as abestosis, a severe scarring of the lungs.

The bill will require the Secretaries of Health and Human Services, Defense and Veterans Affairs to combine forces on a comprehensive, coordinated plan of action with funding authorized for five years to accomplish reduction goals.

Of particular interest is a requirement in the bill directing the Secretaries of Department of Defense (DoD) and Veterans’ Affairs (VA) to implement an early detection and disease management program for military personnel who are at high risk of because of exposure to carcinogens during active duty. As the mesothelioma community knows, many veterans, particularly those who served in the U.S. Navy, now suffer from mesothelioma as a result of the widespread use of on Navy vessels for years.

According to the LCA, the bill includes specific authorizations of $75,000,000 for certain National Institutes of Health (NIH) agencies in FY10 and authorizes such additional sums as may be necessary for all the cited agencies to accomplish the goal for FY2010 through FY2014.

Read more at the LCA web site.


Remembering John Atkinson

12 Jun 2009 by Wendi Lewis under News, Organizations

atkinson 150x150 Remembering John AtkinsonEarly last year, we asked folks reading this site to rally around survivor John Atkinson, who had entered a contest sponsored by Golf Digest to play in a celebrity foursome at the US Open Golf Tournament. John won that contest, and last June he joined celebrities Matt Lauer of The Today Show, entertainer Justin Timberlake, and Dallas Cowboys quarterback Tony Romo on the links. We are sad to announce today that yesteray Atkinson lost his battle with , and passed away at age 40.

John’s story touched a lot of people, and did so much to help raise awareness about , which is the leading cancer killer. His strength and determination to fight this disease, and his evident love for his family, his friends, and life itself, touched so many people.

While mesothelioma is not usually considered traditional “,” as it most often affects the lining of the lungs but can also affect the lining of the stomach or, more rarely, the heart, we still rally around the community in its call for more research, more funding and more awareness. Today, we join the Alliance in remembering this remarkable man who, as he fought his own personal battle, also dedicated himself to fighting the stigma of , and fighting for a cure.

This morning Matt Lauer presented a tribute to John Atkinson on The Today Show. Take a moment to watch this short tribute to a remarkable man. Thoughts and prayers go out to his family and friends.

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LCA Chairman Coady has died

1 Jul 2008 by Wendi Lewis under News, People

coady 150x150 LCA Chairman Coady has diedI was very sad today to learn that Rear Admiral Phil Coady, U.S. Navy (Ret.) passed away yesterday, June 30. Admiral Coady served as Chairman of the Board for the Lung Cancer Alliance, and was kind enough to share his story with this blog in April. A non-smoker, Coady was diagnosed with non-small cell in 2005. The diagnosis spurred him to advocacy, particularly on behalf of Veterans.

Although Coady didn’t suffer from mesothelioma, he was very much aware of the risks posed by . His work during his time in the Navy very often put him in contact with the substance, he said, and seven of his friends died from mesothelioma since his retirement. In addition, for 10 years following his retirement, Coady worked as president of the Navy Mutual Aid Association, a non-profit veterans benefit group and life insurance service, where he said he saw what he thought was a disproportionate amount of deaths.

When he began investigating research efforts, Adm. Coady was shocked at the relatively few dollars spent by the Veterans Administration and the U.S. Department of Defense, considering the number of veterans affected by the disease. He also was disappointed at the overall lack of funding for research in comparison to spending on other cancers, especially since is the leading cancer killer.

He dedicated himself as Chairman of the Board for the Alliance, fighting the battle for awareness and funding under the organization’s motto “No More Excuses. No More .” He led efforts in lobbying Congress to make a national health priority.

Just last week, Coady saw some of the first fruits of his efforts, when Senators Dianne Feinstein (D-CA) and Chuck Hagel (R-NE) introduced legislation in the U.S. Senate creating and authorizing at least $75 million for research. This is the first ever multi-agency, comprehensive program targeted at reducing .

Perhaps the best memoriam Adm. Coady could receive is for supporters of awareness and research to contact their U.S. Senators NOW and ask them to add their support to S. 3187, the Reduction Act. Remember him and take action for those to come after him! You can view his obituary here.

Blessings to Adm. Coady’s family at this time of loss.


Senate introduces lung cancer legislation

25 Jun 2008 by Wendi Lewis under Legal, News

Today, the U.S. Senate is considering landmark legislation that will create a multi-agency, comprehensive program to target , and that will authorize $75 million for the first phase of a five-year program to reduce . the Reduction Act of 2008 was co-sponsored by Sen. Dianne Feinstein (D-CA) and Sen. Chuck Hagel (R-NE). Mesothelioma sufferers can benefit as a result of this increased focus on research and early detection.

Senators Feinstein and Hagel were instrumental in authoring a policy resolution in 2007 to designate as a public health priority, which was passed unanimously. The resolution called for research, better treatments, and early detection, with a goal of reducing by 50 percent by 2015.

This new bill would establish that comprehensive program under law and authorize funding, according to a release from the Alliance, which today issued a call to action for its support.

“We have seen great advancements in prostate and breast cancer survival rates and we must commit ourselves to making the same progress with ,” Sen. Hagel said, noting that currently accounts for 28 percent of all cancer deaths in the United States.

Each year, kills more people than breast, prostate, colon, kidney, melanoma and liver cancer, combined.

Senator Feinstein said, “It’s time for the federal government to step up its efforts and make fighting a national priority.”

Contact your Senator TODAY!


Atkinson conquers U.S. Open course

16 Jun 2008 by Wendi Lewis under Events, News, People

I hope everyone had the chance to watch John Atkinson play the U.S. Open golf course at Torrey Pines, California, as part of a celebrity foursome with NBC Today Show anchor Matt Lauer, Dallas Cowboy player Tony Romo and entertainer Justin Timberlake. The event was broadcast on NBC Sports on Sunday, Father’s Day.

I’ve posted about John several times on this site. He was selected by the readers of Golf Digest magazine to participate in this first-ever celebrity foursome event. Diagnosed with Stage IV , John used the event as a chance to raise awareness about and to inspire those with the diagnosis to keep meeting the challenges of everyday life, and taking advantage of life’s unique opportunities.

This morning, Matt Lauer interviewed John and his brother, Kevin, who caddied for his big brother on the last hole in an emotional show of support. Watch the video at MSNBC.com.

In addition to this , the Alliance has the first part of what will be a multi-part documentary about John’s battle against up on its site. John is a spokesperson for the organization. Watch the first episode at the LCA web site.

John has made it his mission to raise awareness about , with the hopes of increasing funding for research and treatment. His campaign gives hope to everyone who battles in its many forms, including those fighting mesothelioma, which affects the lining of the lungs. Thank you, John, for your willingness to go that extra mile!


Quick update on Atkinson

6 Jun 2008 by Wendi Lewis under Events, News, People

Just a quick update on John Atkinson. I’ve posted many times this week about the survivor, who will play in a celebrity foursome on the U.S. Open Torrey Pines course in California with entertainer Justin Timberlake, NBC Today Show anchor Matt Lauer, and Dallas Cowboys star Tony Romo. John’s round of golf will be televised on NBC Sports at 2 p.m. EDT on Sunday, June 15. But I need to clarify that John is actually playing his round TODAY, Friday, June 6.

He arrived in California yesterday for a practice round, and will tee off with the celebrities in front of 250 spectators, along with camera crews and journalists, tomorrow. His final round and his score will be televised on June 15 as part of the lead-in to the U.S. Open coverage. The special will feature clips from the 18 holes of golf. John vows to break 100 on the tough course, with a goal of shooting an 89.

You can still sign up to sponsor John as part of his U.S. Open adventure, with funds going to research and awareness. He is encouraging people to agree to double their pledge if he makes his goal of breaking 100. Find a sponsor form at the Alliance web site. GO JOHN!


Atkinson in the news again

4 Jun 2008 by Wendi Lewis under Events, News, People

survivor John Atkinson, who I mentioned yesterday, continues to be in the news. Selected by Golf Digest magazine to play as part of a celebrity foursome on the U.S. Open course on Father’s Day, June 15, he is using this opportunity to speak out about awareness and research. Of course, mesothelioma is a type of caused by , and affects the lining of the lungs.

Today there was a great article in the Detroit Free Press about Atkinson. The article states that Atkinson considers his “Achilles heel” in the competition to be the fact that he’s never played the tough Torrey Pines U.S. Open course, not that he has . The avid golfer was on the links shortly after his diagnosis (he shot a 78) and walked the course after completing four rounds of chemotherapy. His goal for the celebrity tournament is to break 100.

You can also keep an eye out for Atkinson on NBC Nightly News tomorrow, June 5. He is scheduled to appear, barring any unexpected national events that bump him from the slot.

Atkinson will be teamed with celebrities Justin Timberlake, NBC Today Show anchor Matt Lauer, and Dallas Cowboy star Tony Romo in the tournment, which will be aired on NBC Sports at 2 p.m. ET June 15.

How wonderful that Atkinson has this chance in the spotlight to talk about , and to promote efforts to increase funding for research and to raise awareness. He also is an official spokesman for the Alliance.


Atkinson talks to ESPN2 about U.S. Open

3 Jun 2008 by Wendi Lewis under Events, News

atkinson 150x150 Atkinson talks to ESPN2 about U.S. OpenA few weeks ago, I talked about survivor John Atkinson, who was selected by Golf Digest magazine to play the U.S. Open golf course on Father’s Day, June 15, as part of a celebrity foursome with Today Show host Matt Lauer, pop star and entertainer Justin Timberlake, and Dallas Cowboy Tony Romo. Friday morning, he was on an ESPN2 radio program, “Mike & Mike in the Morning,” where he discussed his thoughts on the upcoming event.

John Atkinson talks about U.S. Open plans with ESPN2.

Atkinson will play the tough Torrey Pines course in San Diego. While on the radio program, John shares the story of his diagnosis and battle with , and his plans to break 100 in the tournament.

John is a spokesperson for the Lung Cancer Alliance. Visit their web site to download a sponsor form, and consider hosting a party on the day of the celebrity tournament. John is encouraging donors to vow to double their pledge if he breaks 100.

Let’s get behind this remarkable man, who has a unique opportunity to share the message of the importance of research and funding. will broadcast the celebrity event from 2-3 p.m. ET.


Complicated path for veterans with mesothelioma

14 May 2008 by Wendi Lewis under Legal, News

navy logo Complicated path for veterans with mesotheliomaThe prevalence of , especially through the mid-1970s, has put millions of Americans at risk for mesothelioma, a painful, usually lethal cancer almost always related to asbestos exposure. Among the hardest hit are U.S. veterans who were exposed occupationally, especially in Navy ships and shipyards.

According to the U.S. Department of Veterans Affairs, there are currently 25 million living individuals who have served in the United States’ armed forces. It is believed that a great number of them were exposed to toxic -containing materials during military service.

Every ship and shipyard built by the Navy before the mid-70s was fitted with numerous -containing materials. These materials were extensively used in engine and boiler rooms and other areas below deck for fire safety purposes, as well as in other areas of the ship. In fact, virtually no portion of a naval ship was -free between the 1930s and mid-1970s.

Unfortunately, veterans have little recourse when diagnosed with mesothelioma they believe to be the result of exposure during their time of service. Because use was so widespread before the first bans in the 1970s, it is very difficult for veterans to prove that exposure occurred only in military service.

Veterans are not legally allowed to seek compensation for mesothelioma and other -related diseases from the U.S. government through the court system. Ailing veterans must file a claim against the manufacturer, and they also have the legal option to seek assistance through The U.S. Department of Veterans Affairs (VA).

The VA is a government-run benefit system that is responsible for administering benefit programs to veterans, their families, and survivors. It is an incredibly complex system that comprises the second-largest federal department, after the Department of Defense. A search of the organization’s web site turns up no information about or mesothelioma. However, there are some organizations, such as Veterans Assistance Network (www.va-claim-help.com), that can help veterans wade through the VA benefits system.

is usually an indolent cancer that takes years to develop, thus the burden of treatment is falling most heavily on the VA. Late stage is twice as costly to treat as early stage.

In February the Alliance (LCA) announced that for the second year in row a coalition of top veteran organizations is calling for a screening program for veterans at high risk of , to be included in the Independent Budget for Fiscal Year 2009 (FY09). This highly regarded comprehensive alternative budget addresses the most urgent needs of veterans, and urges Congress and the Department of Veterans Affairs to initiate a $3 million pilot screening program for veterans at high risk.

The AMVETS, Disabled American Veterans, Paralyzed Veterans of America and the Veterans of Foreign wars are the four co-authors of this document. More than 50 organizations support the Independent Budget.

A research program carried out by the International Early Action Program at 40 centers in 26 states and 6 foreign countries during the past 13 years indicates that CT screening can detect at Stage 1 in 85 percent of cases, and those treated immediately had a 10-year survival rate of 92 percent. By partnering with these types of programs, the Veterans Administration could quickly implement a pilot screening program for veterans at high risk, with a broad geographic reach and significant cost savings.

Rear Admiral Philip J. Coady, USN, (Ret.), chairman of LCA’s Board of Directors said, “ continues to kill more men and women every year than all the other major cancers – breast, prostate, and colon – combined, and our veterans are at even higher risk, especially those whose active duty service exposed them to Agent Orange, , spent nuclear fuels, propellant gases and other carcinogens.”

Admiral Coady, a 34-year Navy veteran who never smoked, was diagnosed with three years ago.

“Because there are usually no specific symptoms, most people are diagnosed so late they die within a year,” he pointed out. “Yet advanced CT technology that can diagnose at its earliest, most curable stage is available right now, and high-risk veterans not benefiting from this is wrong,” he said.

Sources: .com, VAWatchdog.org


Lung cancer advocate Atkinson U.S. Open pledge

13 May 2008 by Wendi Lewis under Events

atkinson2 150x150 Lung cancer advocate Atkinson U.S. Open pledgeLast week I helped spread the word that Alliance advocate John Atkinson has been selected by Golf Digest magazine to play the U.S. Open golf course, on Father’s Day, June 15, as part of a celebrity foursome with NBC Today Show’s Matt Lauer, entertainer Justin Timberlake, and NFL star Tony Romo. He plans to use the opportunity to advocate for awareness and research. NBC Sports will broadcast the celebrity event from 2-3 p.m. ET, where John hopes to break 100 on the tough Torrey Pines course.

John was diagnosed with stage IV a little more than a year ago at age 38. He was selected from among 56,000 people who entered a contest sponsored by Golf Digest, the United States Golf Association and NBC Sports to play the U.S. Open Course as part of the celebrity team. You can read more of his inspiring story at Golf Digest online.

In addition to raising awareness, John and the Alliance would like to use this event as an opportunity to raise funds for research. They are encouraging people to make a donation or pledge to LCA in John’s honor. There’s even a great idea for a “game day” event, where awareness supporters can collect pledges and host a pledge party with family and friends. John is urging donors to consider doubling their pledge amount if he breaks 100!

Visit the Lung Cancer Alliance U.S. Open pledge page for donation information, pledge party forms, and links for help and more information.

What a GREAT opportunity to raise the profile of awareness, and communicate to America – and beyond – what an important issue this is for national health! Watch for John in the coming weeks, as he is scheduled to appear on national news programs like NBC Nightly News, The Today Show and The Tonight Show. I’ll try to update when his appearances are scheduled.