On Friday, Sept. 26, National Mesothelioma Awareness Day will shed light around the nation on a dangerous form of cancer. Established in 2004, this awareness day, established and promoted by the Mesothelioma Applied Research Foundation (Meso Foundation), has been the driving force behind the movement to bring attention and funding to mesothelioma research. In the past ten years, National Mesothelioma Awareness Day has raised nearly $1 million, received numerous local, state, and national government proclamations, and been the focus of dozens of media stories. Volunteers around the country unite to spread their message about mesothelioma through events and activities on this day every year. (more…)
Posts Tagged ‘Meso Foundation’
Mary Hesdorffer, executive director of the Mesothelioma Applied Research Foundation (Meso Foundation), spoke during the organization’s July 2014 board meeting about the advances in clinical trials for mesothelioma patients, which is allowing them to aid mesothelioma patients more effectively. Ms. Hesdorffer is a nurse practitioner with more than 16 years of experience in mesothelioma treatment. (more…)
The Mesothelioma Applied Research Foundation (Meso Foundation) has launched a new support group aimed at providing mesothelioma victims and their families and/or caregivers a way to easily connect with others who are also struggling with the asbestos-caused cancer. Called Meso-Connect, the program is available to people at all stages of the disease, and provides opportunities both for those who need help and those who feel they would like to help others. (more…)
Today marks the start of Global Asbestos Awareness Week (GAAW), which will be observed April 1-7, 2014. The event was started as National Asbestos Awareness Day in 2005, expanded to National Asbestos Awareness Week, and is now recognized globally as a time to educate the public about the dangers of asbestos. (more…)
The Mesothelioma Applied Research Foundation (Meso Foundation) this week announced the 2013 recipients of mesothelioma research grant money totaling $500,000. Five projects were selected for funding. Each will receive $100,000. The Foundation has contributed $8.7 million in funding for mesothelioma research since the program began. (more…)
The Mesothelioma Applied Research Foundation (Meso Foundation) has launched a unique fund-raising campaign using social media. The “Peace. Joy. CURE.” campaign began Nov. 25 and will run through Dec. 31. A long-time Meso Foundation donor will match every dollar donated through the online drive, up to $10,000.
Donors can visit the donation page of the 2013 Meso Foundation Challenge directly through a link on the Meso Foundation website at www.curemeso.org or by visiting the Meso Foundation Facebook page, www.facebook.com/curemeso; or Twitter, @curemeso.
Mesothelioma is a rare form of cancer caused by exposure to asbestos that affects approximately 3,500 people each year. It most commonly affects the lining of the lungs (pleural mesothelioma) or abdomen (peritoneal mesothelioma). It can also sometimes affect the lining of the heart (pericardial mesothelioma). There is no known cure for mesothelioma.
The Meso Foundation is the only nonprofit organization dedicated to ending meso, primarily by providing funding for research. To date, the Foundation has funded $8.2 million in mesothelioma research. The Meso Foundation also provides a strong support network for “meso warriors” – those battling mesothelioma – and their families and caregivers, as well as spearheading education and advocacy efforts.
More than 600 people are helped each month by the Meso Foundation, and 81 cents of every dollar given to the Foundation goes directly to programs.
I was very sad to report earlier this month that our beloved meso warrior, Debbie Brewer, passed away after battling six years against mesothelioma. Her funeral is set for Thursday, June 20, a 1 p.m. at Weston Mill Crematorium, Plymouth, U.K. Debbie’s family says all whose lives she touched are welcome to attend the service. Well-wishers are asked – per Debbie’s request – not to wear black to the services. (more…)
I am so sad today to learn that Meso Warrior Debbie Brewer, our friend in the U.K., has passed away. Debbie was a truly wonderful person with the biggest heart. She fought every day not just for herself, but for everyone with mesothelioma, everyone affected by asbestos disease. I will miss her so much.
That may seem strange to some, since I never had the chance to meet Debbie face to face, but I felt as if she was a friend. Debbie was the first person to allow us to share her story here on myMeso. She wrote her own blog, Mesothelioma & Me, talking not only about her fight for meso awareness and her physical battles with the disease, but sharing funny, sad, sometimes angry, and everyday stories about her life. She was an open book and welcomed friends with open arms.
Occasionally I had people email me who had read Debbie’s story here, and wondered if she might be willing for them to contact her to talk. Debbie was always willing.
Debbie traveled to the U.S. and worked with the Asbestos Disease Awareness Organization (ADAO) and the Mesothelioma Applied Research Foundation (Meso Foundation), connecting with more people and spreading the message about the dangers of asbestos exposure and the desperate need for a cure.
She traveled to Germany to undergo a new experimental treatment, for a time taming the tumor she – with her trademark sense of humor – nicknamed Theo. Damn Theo. She spoke to members of Parliament, petitioning for relief for asbestos victims. She worked with the Mick Knighton Foundation, helping to raise funds for mesothelioma research and treatment.
I was happy that Debbie accepted my friend request on Facebook. She was a prolific poster, sharing stories and photos of her travels, her beautiful family and children, her shenanigans with friends, her wigs and hats, a new car. All the ups and downs were there. Oh, how I will miss seeing her signature “xx”.
Debbie, I know this post is rambling. Your passing seems so sudden, and the world is a much sadder place without you in it. I hope you are running and laughing and strong now. I know you are bringing joy with your tremendous spirit.
Friends of mesothelioma survivor Janelle Bedel – both IRL (web-speak for “in real life”) and those in the virtual online community – have flooded Facebook with support for the young woman who is battling this asbestos-related cancer. They are changing their profile pictures to the symbol used by comic-book hero Wonder Woman, the nickname earned by Bedel for her courage and strength in fighting the life-threatening illness, and hoping to raise awareness by sharing her story. (more…)
Those of you who have been following the myMeso blog for a while remember our friend Heather Von St. James, a meso survivor and warrior from Minnesota. Heather was diagnosed with malignant pleural mesothelioma just a few months after giving birth to her daughter Lily, at the young age of 36. There is currently no known cure for mesothelioma, which is related ot asbestos exposure, and traditionally patients are given a matter of months to live following a diagnosis. This was unacceptable to Heather and her husband, Cameron, were determined to find an answer, and to fight. (more…)