Posts Tagged ‘Meso Foundation’

National Mesothelioma Awareness Day is September 26

22 Sep 2014 by Wesley Smithart under Events, News, Organizations, Research/Treatment

MARF logo square National Mesothelioma Awareness Day is September 26On Friday, Sept. 26, National will shed light around the nation on a dangerous form of cancer. Established in 2004, this awareness day, established and promoted by the Applied Research Foundation (Meso Foundation), has been the driving force behind the movement to bring attention and funding to research. In the past ten years, National has raised nearly $1 million, received numerous local, state, and national government proclamations, and been the focus of dozens of media stories. Volunteers around the country unite to spread their message about through events and activities on this day every year. (more…)


Significant progress in mesothelioma clinical trials indicates a bright future ahead

21 Aug 2014 by Temp Temple under Organizations, Research/Treatment

MARF logo square Significant progress in mesothelioma clinical trials indicates a bright future aheadMary Hesdorffer,  executive director of the Applied Research Foundation (Meso Foundation), spoke during the organization’s July 2014 board meeting about the advances in clinical trials for patients, which is allowing them to aid patients more effectively. Ms. Hesdorffer is a nurse practitioner with more than 16 years of experience in mesothelioma treatment. (more…)


Meso Foundation launches peer-to-peer support group for mesothelioma patients, caregivers

1 May 2014 by Wendi Lewis under News, Organizations

MARF logo square Meso Foundation launches peer to peer support group for mesothelioma patients, caregiversThe Applied Research Foundation (Meso Foundation) has launched a new support group aimed at providing victims and their families and/or caregivers a way to easily connect with others who are also struggling with the -caused cancer. Called Meso-Connect, the program is available to people at all stages of the disease, and provides opportunities both for those who need help and those who feel they would like to help others. (more…)


Global Asbestos Awareness Week – April 1-7, 2014

1 Apr 2014 by Wendi Lewis under Events, Research/Treatment

Asbestos Awareness Week 2014 100x100 Global Asbestos Awareness Week   April 1 7, 2014Today marks the start of Global Awareness Week (GAAW), which will be observed April 1-7, 2014. The event was started as National Awareness Day in 2005, expanded to National Awareness Week, and is now recognized globally as a time to educate the public about the dangers of . (more…)


Meso Foundation announces 2013 research award grants

5 Feb 2014 by Wendi Lewis under News, Organizations, Research/Treatment

MARF logo square Meso Foundation announces 2013 research award grantsThe Applied Research Foundation (Meso Foundation) this week announced the 2013 recipients of research grant money totaling $500,000. Five projects were selected for funding. Each will receive $100,000. The Foundation has contributed $8.7 million in funding for research since the program began. (more…)


Meso Foundation raising funds using social media channels

3 Dec 2013 by Wendi Lewis under Events, News, Organizations, Research/Treatment

peace joy cure campaign 235x300 Meso Foundation raising funds using social media channelsThe Applied Research Foundation (Meso Foundation) has launched a unique fund-raising campaign using social media. The “Peace. Joy. CURE.” campaign began Nov. 25 and will run through Dec. 31. A long-time Meso Foundation donor will match every dollar donated through the online drive, up to $10,000.

Donors can visit the donation page of the 2013 Meso Foundation Challenge directly through a link on the Meso Foundation website at www.curemeso.org or by visiting the Meso Foundation Facebook page, www.facebook.com/curemeso; or Twitter, @curemeso.

is a rare form of cancer caused by exposure to that affects approximately 3,500 people each year. It most commonly affects the lining of the lungs (pleural mesothelioma) or abdomen (peritoneal mesothelioma). It can also sometimes affect the lining of the heart (pericardial mesothelioma). There is no known cure for .

The Meso Foundation is the only nonprofit organization dedicated to ending meso, primarily by providing funding for research. To date, the Foundation has funded $8.2 million in research. The Meso Foundation also provides a strong support network for “meso warriors” – those battling – and their families and caregivers, as well as spearheading education and advocacy efforts.

More than 600 people are helped each month by the Meso Foundation, and 81 cents of every dollar given to the Foundation goes directly to programs.

For more information or to donate, visit www.curemeso.org, email info@curemeso.org, or call 877-363-6376.


Debbie Brewer’s funeral set for June 20; family welcomes all whose lives she touched

18 Jun 2013 by Wendi Lewis under Events, News, People

debbie brewer 10 2009 100x100 Debbie Brewers funeral set for June 20; family welcomes all whose lives she touchedI was very sad to report earlier this month that our beloved meso warrior, Debbie Brewer, passed away after battling six years against . Her funeral is set for Thursday, June 20, a 1 p.m. at Weston Mill Crematorium, Plymouth, U.K. Debbie’s family says all whose lives she touched are welcome to attend the service. Well-wishers are asked – per Debbie’s request – not to wear black to the services. (more…)


In memory of Meso Warrior Debbie Brewer

9 Jun 2013 by Wendi Lewis under Events, People

Debbie Brewer april 2012 209x300 In memory of Meso Warrior Debbie BrewerI am so sad today to learn that Meso Warrior Debbie Brewer, our friend in the U.K., has passed away. Debbie was a truly wonderful person with the biggest heart. She fought every day not just for herself, but for everyone with , everyone affected by disease. I will miss her so much.

That may seem strange to some, since I never had the chance to meet Debbie face to face, but I felt as if she was a friend. Debbie was the first person to allow us to share her story here on myMeso. She wrote her own blog, Mesothelioma & Me, talking not only about her fight for meso awareness and her physical battles with the disease, but sharing funny, sad, sometimes angry, and everyday stories about her life. She was an open book and welcomed friends with open arms.

Occasionally I had people email me who had read Debbie’s story here, and wondered if she might be willing for them to contact her to talk. Debbie was always willing.

Debbie traveled to the U.S. and worked with the Disease Awareness Organization (ADAO) and the Applied Research Foundation (Meso Foundation), connecting with more people and spreading the message about the dangers of asbestos exposure and the desperate need for a cure.

She traveled to Germany to undergo a new experimental treatment, for a time taming the tumor she – with her trademark sense of humor – nicknamed Theo. Damn Theo. She spoke to members of Parliament, petitioning for relief for victims. She worked with the Mick Knighton Foundation, helping to raise funds for research and treatment.

I was happy that Debbie accepted my friend request on Facebook. She was a prolific poster, sharing stories and photos of her travels, her beautiful family and children, her shenanigans with friends, her wigs and hats, a new car. All the ups and downs were there. Oh, how I will miss seeing her signature “xx”.

Debbie, I know this post is rambling. Your passing seems so sudden, and the world is a much sadder place without you in it. I hope you are running and laughing and strong now. I know you are bringing joy with your tremendous spirit.

x


Meso warrior friends flood Facebook with support for ‘Wonder Woman’ Janelle

4 Jun 2013 by Wendi Lewis under Events, News, People

Janelle Wonder Woman 100x100 Meso warrior friends flood Facebook with support for Wonder Woman JanelleFriends of survivor Janelle Bedel – both IRL (web-speak for “in real life”) and those in the virtual online community – have flooded Facebook with support for the young woman who is battling this -related cancer. They are changing their profile pictures to the symbol used by comic-book hero Wonder Woman, the nickname earned by Bedel for her courage and strength in fighting the life-threatening illness, and hoping to raise awareness by sharing her story. (more…)


Meso survivor Heather shares her message of hope in video

14 May 2013 by Wendi Lewis under News, Organizations, People, Research/Treatment, Video

heather thumbs up 11 2009 100x100 Meso survivor Heather shares her message of hope in videoThose of you who have been following the myMeso blog for a while remember our friend Heather Von St. James, a meso survivor and warrior from Minnesota. Heather was diagnosed with malignant pleural mesothelioma just a few months after giving birth to her daughter Lily, at the young age of 36. There is currently no known cure for , which is related ot asbestos exposure, and traditionally patients are given a matter of months to live following a diagnosis. This was unacceptable to Heather and her husband, Cameron, were determined to find an answer, and to fight. (more…)