Posts Tagged ‘meso’

National Mesothelioma Awareness Day is September 26

22 Sep 2014 by Wesley Smithart under Events, News, Organizations, Research/Treatment

MARF logo square National Mesothelioma Awareness Day is September 26On Friday, Sept. 26, National Mesothelioma Awareness Day will shed light around the nation on a dangerous form of cancer. Established in 2004, this awareness day, established and promoted by the Mesothelioma Applied Research Foundation (Meso Foundation), has been the driving force behind the movement to bring attention and funding to mesothelioma research. In the past ten years, National Mesothelioma Awareness Day has raised nearly $1 million, received numerous local, state, and national government proclamations, and been the focus of dozens of media stories. Volunteers around the country unite to spread their message about mesothelioma through events and activities on this day every year. (more…)


Meso Foundation 2013 Symposium in cyberspace!

5 Mar 2013 by Wendi Lewis under Events, News, Organizations

Meso Symposium 2013 300x193 Meso Foundation 2013 Symposium in cyberspace!The Mesothelioma Applied Research Foundation (Meso Foundation) 2013 Symposium kicks off Thursday, March 7, in Las Vegas, Nevada. If you can’t attend in person this year, don’t worry! You can attend “virtually” with a live streaming broadcast of the conference! (more…)


Debbie Brewer to voice mesothelioma concerns to Parliament!

29 Jan 2013 by Wendi Lewis under Events, News, People

Debbie Brewer 100x100 Debbie Brewer to voice mesothelioma concerns to Parliament!Exciting news!! Mesothelioma Warrior Debbie Brewer, our friend from the U.K., will speak to the House of Commons of the United Kingdom in July! Debbie will address Members of Parliament, sharing her personal battle with mesothelioma and raising awareness about the dangers of asbestos exposure. (more…)


Meso Foundation announces five additional research grants

17 Feb 2012 by Wendi Lewis under News, Organizations, Research/Treatment

marf logo square Meso Foundation announces five additional research grantsThis week the Mesothelioma Applied Research Foundation (Meso Foundation) announced it will provide an additional $500,000 in grant money for research projects directed toward finding treatments and a cure for mesothelioma. This will bring the Foundation’s current level of financial commitment to mesothelioma research projects to $7.6 million. (more…)


Mark your calendar for mesothelioma, asbestos awareness events

17 Aug 2009 by Wendi Lewis under Events, News, Organizations

Proclamation2 Mark your calendar for mesothelioma, asbestos awareness eventsIt’s not too early to begin making preparations for Mesothelioma Awareness Day, September 26. The Meso Foundation has a helpful toolkit on its web site, that will assist you in planning mesothelioma awareness events in your area. There are two main activities encouraged – a radio public service announcement (PSA) campaign, and a proclamation from your local government to declare Meso Awareness Day in your community.

Here at myMeso, we have had great support for both Mesothelioma Awareness Day and Asbestos Awareness Day (April 1) from the City of Montgomery in the past. This year, we are hoping to expand our efforts, and share this important message with even more folks throughout our community and across the state. I’ll keep you posted as our plans develop. If you’d like any help in your area, please let me know, and I’ll be glad to lend a hand, or certainly contact the good folks at the Meso Foundation.

In addition to Meso Awareness Day, there are a few other upcoming mesothelioma and asbestos awareness events – go ahead and mark your calendar!

  • The Asbestos Disease Awareness Organization (ADAO) has announced its Sixth Annual International Asbestos Awareness Day (AAD) Conference will be held in Chicago, Ill., April 9-11, 2010. Registration starts January 1, 2010. The theme is “Science and Technology Proves Asbestos is a Carcinogen.” This great conference features tons of expert speakers, as well as a heartfelt Remembrance Brunch to honor those who lost their lives to asbestos disease. Visit the ADAO web site for more information, and make plans now to attend.
  • The Mesothelioma Applied Research Foundation (Meso Foundation) announced the 2010 International Symposium on Malignant Mesothelioma will again be held in Washington, D.C., and the event will return to the Omni Shoreham Hotel, which was a wonderful host for the event this year. Dates are June 10-12, 2010.

I will provide more information about both of these events as details are announced, but it’s never too late to make your plans. These events provide a wonderful opportunity to learn more about the dangers of asbestos, and the progress being made in research and treatment of asbestos-related diseases like mesothelioma. They also are a wonderful way to network and make connections with other people who are fighting the battle to prevent and cure mesothelioma.


Asbestos Awareness Conference set for March 28

5 Feb 2009 by Wendi Lewis under Events, News, Organizations

The Asbestos Disease Awareness Organization (ADAO) has announced its Fifth Annual International is set for March 28, 2009, in Manhattan Beach, Calif. The purpose of the event is to educate the public about the dangers of asbestos, ban its use and encourage research efforts to improve treatment options for asbestos diseases like mesothelioma.

The conference will feature prominent physicians, scientists, safety and health directors, as well as survivors, who will present current information about the status of asbestos in the U.S. and worldwide. Discussion will include facts on exposure, asbestos-related diseases and how to prevent them, and where to turn for help.

In addition to the main event on Saturday, there will be an evening reception on Friday, March 27, featuring musician Jordan Zevon, whose father, legendary singer-songwriter Warren Zevon, died of mesothelioma in 2003; and a Unity and Hope Remembrance Brunch on Sunday, March 29.

Five individuals will be honored for their outstanding work in raising awareness about asbestos exposure: U.S. Senator Barbara Boxer for her work to ban asbestos in the U.S.;  Margaret Seminario, AFL/CIO, for her efforts to unite, educate and empower asbestos victims and workers; Dr. Stephen Levin, MD, for his research into the social and medical impact of asbestos; and Pralhad Malvadkar and Raghunath Manwar for their work with victims of asbestos exposure in India and worldwide.

The conference is presented by ADAO, the Barbara Ann Karmanos Cancer Institute and the International Ban Asbestos Secretariat.

For more information or registration, visit ADAO online.


Remembering Warren Zevon, 1947-2003

5 Sep 2008 by Wendi Lewis under People

Sunday, Sept. 7, is the fifth anniversary of Warren Zevon’s death. The Grammy award-winning composer and musican, who penned such popular tunes as “Werewolves of London,” passed away in 2003 from mesothelioma, at age 56.

The following videos are from Zevon’s last appearance on the David Letterman show in October 2002, where he was the only guest for the program, a tribute to his life and work. During the interview with Letterman, Zevon quipped that facing death had taught him to “enjoy every sandwich,” a reminder to savor each moment of life.

These videos provide a wonderful portrait of this talented musician. He is greatly missed.

Warren Zevon’s son, Jordan, also a talented musician, is an active advocate for mesothelioma and asbestos disease awareness, and spokesperson for the Asbestos Disease Awareness Organization.


Sears fined for improper asbestos removal

3 Sep 2008 by Wendi Lewis under Legal, News

200px asbestos warning 150x150 Sears fined for improper asbestos removal Sears, Roebuck and Co. will pay a civil penalty of $55,000 to the State of Massachusetts for a violation of its Clean Air Act and Consumer Portection Act following the improper removal of asbestos from a customer’s home. The story in the Wicked Local Pembroke reports Sears contractors improperly removed asbestos when replacing a boiler in October 2004.

The news agency reports that the complaint filed in Suffolk Superior Court notes that Sears assured its customer that it could remove an existing boiler, which contained asbestos insulation, and replace it with a new one, safely and cost-effectively. The complaint says Sears assured the customer the workers would be properly licensed and trained.

However, the workers who arrived to complete the work – a plumber and second subcontractor – were not licensed or trained to handle asbestos. The complaint notes that the workers removed the existing boiler wearing no protective gear, did not seal the area, and dropped the boiler, breaking it open and releasing asbestos into the air when the insulation crumbled. The workers cleaned up the spilled asbestos insulation material with their bare hands, and disposed of it in regular black trashbags, the Wicked Local reports.

Asbestos dust was released into the air in the customers’ basement and first-floor area, exposing them to carcinogens. Asbestos is linked to the development of asbestos related diseases including mesothelioma and asbestosis.

According to the Massachusetts Department of Environmental Protection (MassDEP), contractors need to determine whether asbestos is present pior to conducting any renovation or demolition activity. Companies doing work on a project that possibly contains asbestos are required to hire a Division of Occupational Safety (DOS) certified asbestos abatement contractor.

If asbestos is present, there are MassDEP requirements for anyone handling asbestos, including special supplies and equipment, specific work practices including setting up a containment area, air filtration equipment, packaging and labeling of waste. If the area is contaminated by improper handling of asbestos, MassDEP says, cleanup procedures specific to the job are required.

Contractors should check with their state office of Environmental Protection or Occupational Safety before beginning any project that may involve asbestos, as regulations may vary from state to state.

According to the Massachusetts complaint, Sears subcontractors never notified their Department of Environmental Protection or filed an Asbestos Notification Form when removing the boiler.

The Wicked Local reports part of the settlement will require Sears to develop and implement a customized asbestos training program for salespeople and managers, and to provide enhanced supervision on all jobs where asbestos may be present.


UK’s youngest meso victim passes away

2 Sep 2008 by Wendi Lewis under News, People

A young woman believed to be Britain’s youngest mesothelioma patient, at age 28, passed away last week, just two years after her diagnosis, according to a story in the Daily Mail. Leigh Carlisle, who grew up in Manchester, had peritoneal mesothelioma, affecting the lining of the abdomen.

Because of its long latency period – from 20 up to 50 years – mesothelioma usually occurs in older people, age 50 and older. For that reason, Carlisle’s mesothelioma eluded diagnosis early on, with doctors mistaking her symptoms for ailments such as irritable bowel syndrome (IBS), pelvic infection and endometriosis. Doctors were stunned when they diagnosed peritoneal mesothelioma.

Because of her young age, researchers believe Carlisle may have come in contact with asbestos – the only known cause of mesothelioma – in her school, or possibly from a factory yard near her childhood home, which she used as a shortcut on her way to school each day. Asbestos sheets were cut at the yard.

According to the report, about 2,000 people in Britain die from mesothelioma each year, a figure that has doubled since 1992. The paper reports that 90,000 people in the UK will die from the disease, and another 90,000 from other asbestos-related lung diseases.

Additionally, the report says about 200 school workers have died or are suffering from illnesses related to asbestos exposure in schools in Britain, where it is estimated that about 13,000 schools still contain asbestos.

Following her diagnosis, Carlisle worked for mesothelioma and asbestos awareness. Her family requests that donations in her memory be made to the Oldham Cancer Support Centre in Failsworth:

Oldham Cancer Support Centre
Failsworth Primary Care Centre
Ashton Road West
Failsworth
M35 0AD
Tel: 0161 906 2940


My Cancer blogger has passed away

18 Aug 2008 by Wendi Lewis under News, People

Earlier this summer I wrote about a blog on National Public Radio called My Cancer. Written by the former executive producer of ABC’s “Nightline” program, Leroy Sievers, the blog was accompanied by weekly podcast, and provided a frank and honest look at living with a cancer diagnosis. In 2001, Sievers was diagnosed with and successfully overcame colon cancer. Then, in 2005, cancer returned, affecting his brain and his lungs. Seivers passed away Friday, at age 53.

The My Cancer blog inspired thousands of cancer survivors from around the world and boasted upward of 30,000 comments. Sievers also appeared on ABC newsman Ted Koppel’s “Living with Cancer” television special, which was broadcast by The Discovery Channel in May 2007, as well as a special broadcast of NPR’s Talk of the Nation program that addressed the same “Living with Cancer” topic, which aired July 9, 2008, also hosted by Koppel and featuring cancer survivor Elizabeth Edwards.

“Leroy gave voice to a topic that we are very uncomfortable with — death and dying,” Ellen McDonnell, NPR’s morning programming director, said in a statement. “My Cancer had a face and a heart and a smile.”

Sievers is survived by his wife, Laurie Singer.

A memorial fund has been set up to honor Sievers memory and work. Donations can be made to the following address:

Leroy Sievers Memorial Fund
Johns Hopkins Kimmel Cancer Center
Patient and Family Services
100 N. Charles Street
Suite 234
Baltimore, Maryland 21201