Mesothelioma Awareness Day will always hold a special significance for Mary Elo. On August 15, 2009, her father passed away as a result of mesothelioma. That alone would mark the day for her, but even more significant, her Dad, George Elo, was just short of his 77th birthday – which is Sept. 26, the same day designated as Mesothelioma Awareness Day.
Her father first started getting sick a couple of years ago, Mary recalls. He had a constant cough, and began losing weight and experiencing shortness of breath. He went to see his primary care physician, and was diagnosed with pneumonia. This happened several times, and always the story was the same. He even had fluid on his lungs, and he would have a short hospital stay, and even though the fluid was tested, there was no diagnosis and he would return home, Mary says.
“We had not heard of mesothelioma before he got his diagnosis,” Mary says. “The doctors didn’t seem to have any sense of urgency to find out what was going on. I began looking on the internet, and he had seven of the nine symptoms for mesothelioma.”
At that point, Mary insisted her father receive a biopsy to find out what was going on with the recurring fluid in his lungs. On June 2, 2009, they received the diagnosis – epithelioid pleural mesothelioma. By the time he was diagnosed, he was already in stage 4. Despite trying chemotherapy, he passed away by August 15.
“The system failed my father,” Mary says. “There was just no sense of urgency.”
A Navy veteran, her Dad was being treated at the VA medical center for an atrial fibrillation, and had been on coumadin for a few years. When he began having his bouts of pneumonia, the doctors at the VA called for an MRI / PET scan, and his May 12
test records indicated a suspicion for mesothelioma. But her parents couldn’t read the paperwork, and the primary care physicians somehow missed the notation, Mary says. He had several thoracenteses, yet never had a diagnosis for mesothelioma until Mary insisted on a biopsy nearly a month later after reading about meso online.
“I was the internet MD at this point,” she says. “It drove my father crazy,” she recalls. By the time he was diagnosed, her Dad, who was 6’1”, weighed only 132 pounds.
Despite the advanced state of his mesothelioma and the toll it had already taken on his body, Mary says her dad immediately began talking to the doctors about treatment options. “He went through this whole process wanting to fight it,” she says. “He did not give up until the very end, and was willing to do anything necessary. He was definitely a warrior.”
Even while his illness sapped his strength and breath, and his chemotherapy caused him physical pain, he barely let it show, Mary says. He was still the rock of the family, looking after his wife of 55 years, Betty, along with his five kids, Mary and her sisters Lisa, Linda and Midge, and their brother Billy; as well as 8 grandchildren and one great-grandchild, all of whom live in Texas, spread out in San Antonio, Austin and Dallas.
“He put a strong face on it, even though he was struggling to breathe every day,” Mary says.
Now, the family is working to raise awareness, hoping to help other families make the diagnosis earlier, and to prevent exposure to asbestos in the first place.
“It seems like after we found out about my Dad’s diagnosis, we heard more about mesothelioma. I was watching the news after my father’s diagnosis and they were talking about Libby, Montana. Speaking to two of my friends, I found that their fathers had died from meso, and one girl’s grandmother died of mesothelioma. A contractor right here in our building, his mother is living with meso and his father passed away as a result of meso. It seems like it’s all around me.”
Mary and her family are working on awareness efforts in their cities. Mary got Austin Mayor Lee Leffingwell to sign a petition declaring Mesothelioma Awareness Day in the city,
and she is working with Texas State Senator Mario Gallegos, Jr., whose father also died of mesothelioma, to create a proclamation in her father’s honor. Her goal is to get a permanent designation for Mesothelioma Awareness Day in the state of Texas.
Additionally, Mary is working with her local running clubs to establish a “Miles for Meso” event similar to the one that is taking place in Alton, Illinois, on Sept. 26 this year. She hopes to have that established and hold the inaugural race in time to celebrate Meso Awareness Day – and her Dad’s birthday – in 2010.
View Comments to “Baucus inserts coverage in health care bill for those affected by Libby asbestos”
Allow me to state my veiw on this”all of a sudden we care about Libby people” by Max “WR disGrace Baucus”, by his slipping this bill into the Health Bill.Please don't get me wrong, we ALL need cared for till we die and it cost a average of $500 thousand to treat a asbestos victim(thats without surgery). I am one of these favored Libby Victims.In the 10 years I have been sick, NOT one dime was spent by WR Grace to pay for my oxygen.Years of constant pleas to help me recieve oxygen that I can not afford and NO ONE helped me.NO ONE.Upon filing Medical bankrupcy, I got a settlement from my Dads death and paid off my bills but the point I want to make is that,reguardless…when we need help, we are going to get it Bankrupcy or not.And unless the Medical condition is not lung related, we are not covered.Even thou we all know what all else we go throu because of this exposure.IF this Medical Bill was to pay for everything,that would be great,but I believe it does not.(MS,Crohns,Colon,etc etc).And the main reason for this letter is that what Max “WR GRace” Baucus did,and I am mad as hell about it and YOU ALL should be mad about it..is what Max has done, knowningly, is put OUR Medical Bill onto the Taxpayer and saving WR disGrace BILLIONS. BILLIONS this will cost all of us/you and WR disGrace don't pay a dime.Not ONLY did WR disGrace get away with murder but now they don't have to pay for what THEY DID to us.This is wrong and this is CRIMINAL and I do hope all the people out there stand up to this failure of justice not only for the Victims but for the rest of this country.Make these Corporations pay for what they did.Not the Victims nor the American Tax payer.REMEMBER Max Baucus works for WR Grace as do alot of corrupt people.Maybe the Meso world can yell about this.I just want WR Grace to pay for me….not you.Thank you and God Bless all who live and die with this madness.
And another thing is that when EPA came to Libby, along with them came this offer.”We all have a opputunity to make alot of money.BUT, we have to do this.”How can we downplay this exposure and then How much money can be made.Since that day in 1999 when we the people were told the truth as to why we are sick and dying…all of a sudden Libby became for sale as a safe place to live and raise a family.And the Millions began to roll into Libby.No oversight,NO accountability and the main players in this web of decieve is the Medical profession.(why not,we are the victims)(They also did this to us) and MILLIONS have gone to those who also work for WR Grace.WR Grace has not left Libby Mt.Hundreds of millions of dollars have been wasted/stolen and not one human being has been saved nor has the killing of more people by the lies being sold that Libby is safe.The Medical people in Libby(Card and St Johns) have been funded by WR Grace since the 70s.Dr Whitehouse who was WR Grace Dr is the one who diagnose all of us with Plueral not asbestosis for WR Graces sake.WR Grace is only paying us 6 thousand for our pain and suffering as Plueral don’t seem to matter.And the State of Montana offered us 3 thousand to settle.Can you believe that!!!! Anyway,the funding of these WR Grace Drs. and players needs to stop and I have gone to the US Attorney and filed a complaint against these doctors who NOW, after 10 years are telling me I have nothing wrong with me…when they know I am dying.I speek for many of us who have become again victims by denial but then again,Libby Mt don’t seem to matter. 2000 lives are no big deal.It is if it is you and your entire family or your from Libby Mt.Please stay away from Libby Mt.Not a safe place to anything…that breathes.God Bless
In spite the odds, health care is very important. It's one consolation for life's hard work especially to the lowly workers.
Wow, I had not known all that about Baucus but I am sorry to hear it. One thing I did already know was that the situation in Libby is a tragedy:
http://www.mymeso.org/2010/01/13/baucus-inserts-coverage-in-health-care-bill-for-those-affected-by-libby-asbestos/
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