Councillors in the town of Hunmanby, located in Scarborough, UK, are concerned about illegal dumping after an upsurge in the practice may have exposed residents to asbestos. A recent report in the Filey & Hunmanby Mercury says a recent increase in flytipping in and around the area included an abandoned pile of asbestos sheeting, which will have to be professionally removed by an asbestos abatement company. Exposure to asbestos fibers can result in the development of mesothelioma and other asbestos-related diseases.

The Hunmanby Parish Council is asking residents of the area to be on the lookout for illegal dumping to help them catch the guilty party or parties. Usually, the council is paid to remove and dispose of items left on roadsides.

The asbestos materials were left on Sheepdyke Lane and discovered by a local farmer, who suspected it was asbestos and called the authorities for safe removal of the material.

The Council requests residents report flytipping in the area by calling the Scarborough Council at (01723) 232323 or the Environment Agency’s 24-hour hotline at 0800 807060. Reports also can be sent to the Scarborough Council web site.

The British Lung Foundation (BLF) is asking residents of the United Kingdom affected by mesothelioma to complete an online survey to help them gather data about the numbers of people affected by the asbestos-related cancer. They hope the data will help them lobby for new legislation to help mesothelioma victims and their families, and to secure funds for research and treatment.

According to a report in the Sheilds Gazette, Dame Helena Shovelton, chief executive of the BLF, is particularly encouraging residents of South Tyneside to participate in the survey. She said the area has been identified as one of the “top 10 hot spots for mesothelioma in the UK.”

The reserach survey is supported by the Mick Knighton Mesothelioma Reserach Fund. Readers of this site are familiar with this organization, which seeks to raise awareness about mesothelioma as well as money for research. The Gazette quotes Anne Craig, an official with the Knighton fund whose husband, David, died of mesothelioma, as saying, “I would encourage people to complete the BLF survey as soon as they can.”

Visit the BLF web site to COMPLETE THE SURVEY. It should only take about 10 minutes to complete. Or, call the BLF helpline at 08458 50 50 20.

The success of chemoembolization in the treatment of our friend Debbie Brewer’s mesothelioma has been featured in national press in the UK, covered by BBC News and picked up by The Press Association. In the report, Debbie calls for the pioneering treatment to be brought to the UK. Currently, she must travel to Frankfurt, Germany, for the treatments.

Readers of myMeso have been following Debbie’s story for a while now, and know that the chemoembolization treatment has been successful, resulting in an overall 53 percent reduction in the size of her tumor, which she humorously nicknamed Theo. Her last visit to the clinic was Dec. 12, when she received the great news that she is now in partial remission as a result of the tumor shrinkage.

Chemoembolization is traditionally used to treat liver cancer. Debbie says the Frankfurt program sees a 60 percent success rate in the treatment of mesothelioma using the process, which introduces chemotherapy drugs directly into the tumor.

Diagnosed with mesothelioma in November 2006, Debbie was initially told she had only a few months to live. It is believed that Debbie contracted mesothelioma from contact with asbestos on her father’s clothes when he unwittingly brought the substance home from work. Determined to beat the odds, she began researching mesothelioma treatments. In addition to the chemoembolization, Debbie uses mistletoe therapy, injecting the extract twice a week.

Read more about Debbie at her blog, Mesothelioma and Me.

As part of her cancer treatments, or more accurately in response to her cancer treatments, our friend in the UK, Debbie Brewer, began a mistletoe treatment in May. Debbie was diagnosed with mesothelioma in November 2006, and is currently receiving chemoembolization treatment, for which she travels to Germany.

Mistletoe is in fairly widespread use in Europe as a complementary therapy in cancer care. It is given in conjunction with traditional cancer treatments such as chemotherapy, to strengthen the body’s immune system and build its natural defenses. It is believed mistletoe therapy can help cancer patients cope with the side-effects of chemotherapy and radiation.

Mistletoe is considered an anthroposophical medicine, which takes into account a total view of the human body and the human being, including physical constitution, the life force, the consciousness and the ego or free will. Mistletoe is harvested from different trees, with different types of mistletoe having different uses. According to the American Cancer Society, the type of mistletoe used in this therapy grows on species of trees native to England, Europe and western Asia. It is NOT the type of mistletoe commonly seen in the U.S. Mistletoe therapy is only available in clinical trials in the United States.

The extract, which comes from the plant’s leaves and twigs but not its berries, is generally given as an injection and after an initial professional application patients can do the treatment themselves at home. Debbie began her mistletoe treatment at The Park Attwood Clinic, which still oversees the process, although she administers her own injections now.

Debbie says she learned about the treatments from a couple who visited her web site, Mesothelioma & Me. She began the mistletoe therapy at the same time as her chemoembolization treatment, which uses targeted chemotherapy applied directly to her tumor and contained with the tumor. For about two years, she also has been struggling with alopecia, which had caused her to lose large patches of her hair.

“Since I started the mistletoe and the chemoembolization, I have noticed within the last two months my hair has grown back and is its natural color,” she wrote to me in an email. “The mistletoe boosts the immune system and also is very good at quelling the side effects of the chemo, although the side effects with chemoembolization are not as bad as the normal chemo.” She said mistletoe is offered on the German health care system, but it is not recognized by the UK system.

Debbie gives herself the mistletoe injections twice a week.

“I would have to say that a lot of the benefits I have had over the last five treatments is down to the mistletoe,” she says. “It works very well alongside the chemo treatment.”

She left today to travel to Germany for the sixth round of her chemoembolization treatments, and will learn the results of the fifth round, which she received November 6. So far, she has experienced tumor shrinkage after each round of chemoembolization.

In what unions in the UK are calling a “hugely important victory,” the High Court ruled insurance policies in place when a worker was exposed to asbestos are liable for asbestos-related illnesses, including mesothelioma, which may develop later, according to a BBC News report. The verdict was delivered in a “test case” that examined six individual cases against insurance companies.

According to the news report, the High Court had to decide which insurance policy should cover mesothelioma and other asbestos related diseases – the one in effect at the time of exposure (a liability insurance held by companies to insure them against claims by employees injured on the job) or the one in effect when a worker becomes sick.

Part of the problem with asbestos-disease related claims is that there is usually a very long latency period for mesothelioma and other asbestos diseases. Sometimes symptoms do not develop for as many as 40 or more years after exposure. As a result, a person does not realize he or she has been injured in the workplace until many years later.

According to the BBC story, this ruling was especially important because many new insurance policies have exemptions against asbestos-related claims.

More than 2,000 people were diagnosed with mesothelioma in the UK last year, and those numbers are expected to grow.

BBC video: Mesothelioma victims’ solicitor Carolann Hepworth reacts to High Court Ruling.

BBC Radio reporter Andrew Hosken spoke with residents in the industrial northeast of England, where mesothelioma deaths have been steadily increasing during recent years. The report estimates mesothelioma could be responsible for up to 100,000 deaths over the next 20 years.

Experts interviewed for the story say mesothelioma is the “biggest public health disaster the world has ever seen.”

Many people in the area of study were exposed to asbestos through their employment in industries including ship building and steel manufacturing.

Listen to the BBC Radio report.

The family of Bob Tolley, who passed away at age 67 from mesothelioma on Sept. 26, 2006 in the UK, has established the Bob Tolley Mesothelioma Snowdrop Fund in his honor. It is their goal to raise awareness of this disease, and raise funds for research for a cure.

Bob became ill in May 2006 and was diagnosed with mesothelioma July 31, 2006. He passed away only two months later.

“We as a family had never heard of Mesothelioma, which is caused by exposure to asbestos,” Bob’s daughter Christine writes on the web site. “It took all this time for the disease to take its toll. Apparently asbestos takes the slowest route around the body, which is why sufferers have no symptoms for years or even decades after being exposed.”

They discovered Bob, a resident of Eastbourne, had worked with asbestos in his job doing gas conversions when natural gas was piped to homes in 1973-74.

On Sept. 29, 2007, the family held its first Charity Day, which featured a golf tournament, auction, raffle and disco, which raised £1,403 in Bob’s memory. On Sept. 20, 2008, the second Charity Day event raised £3,200! The money raised supports the Mick Knighton Mesothelioma Research Fund and The British Lung Foundation.

“By setting up this fund, we can remember a very special person, who was a loving husband, dad, granddad and friend,” Christine says. “He will never be forgotten. We want thoughts of him to raise a smile and a laugh. That is what he would have wanted and that is the sort of man he was.”

You can contact the Bob Tolley Mesothelioma Snowdrop Fund at 180 Ashford Road, Eastbourne, East Sussex, BN22 3UA; telephone 01323 649220 or email millietalula@supanet.com or Chris@nimaprint.co.uk.

Our friend Debbie Brewer, who lives in the UK, reported another good result with her mesothelioma treatment after a visit to Professor Vogl’s team last week in Germany. After three procedures during which she is undergoing chemoembolization, Debbie has seen a 33 percent decrease in the size of her tumor!

The procedure, which is still in a trial stage, targets the tumor with localized chemotherapy. Debbie must travel to Frankfurt, Germany, for the procedure, under the direction of Dr. Thomas J. Vogl, Chairman, Department of Radiology, Department of Diagnostic and Interventional Radiology – University Hospital, Johann Wolfgang Goethe, University of Frankfurt am Main.

Debbie reports that her tumor (Theo, as she calls him) shrunk 18 percent with the first two procedures, and 15 percent after the third treatment. She also says Dr. Vogl is exploring the idea of bringing a mobile unit to the UK that would give people there access to the new therapy. Check out her blog for the latest updates!

A young woman believed to be Britain’s youngest mesothelioma patient, at age 28, passed away last week, just two years after her diagnosis, according to a story in the Daily Mail. Leigh Carlisle, who grew up in Manchester, had peritoneal mesothelioma, affecting the lining of the abdomen.

Because of its long latency period – from 20 up to 50 years – mesothelioma usually occurs in older people, age 50 and older. For that reason, Carlisle’s mesothelioma eluded diagnosis early on, with doctors mistaking her symptoms for ailments such as irritable bowel syndrome (IBS), pelvic infection and endometriosis. Doctors were stunned when they diagnosed peritoneal mesothelioma.

Because of her young age, researchers believe Carlisle may have come in contact with asbestos – the only known cause of mesothelioma – in her school, or possibly from a factory yard near her childhood home, which she used as a shortcut on her way to school each day. Asbestos sheets were cut at the yard.

According to the report, about 2,000 people in Britain die from mesothelioma each year, a figure that has doubled since 1992. The paper reports that 90,000 people in the UK will die from the disease, and another 90,000 from other asbestos-related lung diseases.

Additionally, the report says about 200 school workers have died or are suffering from illnesses related to asbestos exposure in schools in Britain, where it is estimated that about 13,000 schools still contain asbestos.

Following her diagnosis, Carlisle worked for mesothelioma and asbestos awareness. Her family requests that donations in her memory be made to the Oldham Cancer Support Centre in Failsworth:

Oldham Cancer Support Centre
Failsworth Primary Care Centre
Ashton Road West
Failsworth
M35 0AD
Tel: 0161 906 2940

Last week, I mentioned that I’d come across an interesting story about a jazz musician and noted writer in Britain, who released a recording of his work begun in 1973. Keith Shadwick was a professional musician in Australia at the time, and he, along with drummer Gary Norwell, had formed a band called Sun, with a few other musicians. The group released one album, but then broke up. Keith and Gary recorded several jazz tracks before going their separate ways, and Keith revived the project off and on, in the mid 1980s and again in 2005 when he was diagnosed with mesothelioma.

A British record label, Candid Records, agreed to release the CD, and Keith recruited a number of musicians to fill in the gaps on the tracks to finally see the project through. The CD was called Free Time, a name initally selected because the original tracks recorded in 1973-74 were done during a recording studio’s down time, when a friend who worked there was able to lend Keith and Gary the space. But the liner notes, penned by Keith to tell the story of how the recording came together, tend to more solemn reflection.

“Then suddenly completion is in front of you and there is no free time anymore,” he writes, and it’s easy to see the dual implication of a completed project and a completed life.

Keith passed away just as the CD was pressed, and it is unlikely he saw it in its final form.

The special edition release of Free Time is available only through the Candid Records web site, and is shipped from the UK. Cost is £9.99 plus shipping, which totals around $24 U.S. once you figure in the exchange rate. But all proceeds from the sales will go to Bart’s Mesothelioma Research, an organization in Britain dedicated to the treatment of mesothelioma.

I received my CD yesterday. Full of free-spirited modern jazz tunes highlighting Keith on saxophone, the CD is joyful and jamming and sometimes poignant. It is perhaps hardest to comprehend when mesothelioma steals the breath of those who create music, before it steals their life.